Home Menu

Site Navigation



Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

NeuroTalk Support Groups > > >

the monster returned

Reply
 
Thread Tools Display Modes
Old 03-05-2009, 02:49 PM #1
DianaA's Avatar
DianaA DianaA is offline
Member
  
Join Date: Jun 2007
Posts: 329
15 yr Member
DianaA DianaA is offline
Member
DianaA's Avatar
 
Join Date: Jun 2007
Posts: 329
15 yr Member
Default
Quote:
Originally Posted by msdrea83 View Post
well... i reached my 2 month mark of being pain and drug free the beginning of last week... and....... it came back...i started getting the lovely burning pain back in my left hand and wrist. thank god its not back in both arms and my foot, and is just in my hand and wrist. it isn't as intense as it was pre-ketamine infusion. i went to my pm right away and got some fentynol patches. i don't want to be taking ketamine orally while i'm in school full time- i need to be able to think clearly 24/7 in order to do well with a full load. the patches are helping. and when i'm able to afford having another ketamine infusion i will definately have another- i never reached the same state during the infusion as the doctor's other patients because of my tolerance so my dose will be increased from the first one i had. until then, i'm keeping my fingers crossed it doesn't spread. the doc in la that did the infusion wants me to call one of the docs he works with up here and see if he'll do some blocks and some other treatment on the nerves in my elbow until i'm able to get another infusion. i guess treat this as if i was getting rsd for the first time again.... try to stop it from getting worse before it does get worse. but ya. ... the last 2 months were amazing! and its still great for it to just be in my hand/wrist and at a lower intensity vs almost in every limb and raging.
Well, I am sorry to read this post, girl. I was wondering why I haven't heard from you lately. I did notice a whole lot of positive here! I know what it is like to have a vacation from the pain and isn't it amazing to enjoy those days to the fullest!
It sounds like you are on top of the game here. Please keep me posted as to your progress. It was good to see a post from you, I have really been wondering where you were. But, not the answer I was looking for. I'll drop a pm or IM tonight.
I had such a hard time getting off those darn patches. But, they did help. All the best to you. Ill talk to you soon. Di
DianaA is offline   Reply With QuoteReply With Quote
Old 03-05-2009, 03:57 PM #2
info hungry info hungry is offline
Junior Member
  
Join Date: Mar 2009
Posts: 41
15 yr Member
info hungry info hungry is offline
Junior Member
 
Join Date: Mar 2009
Posts: 41
15 yr Member
Default
Hi Andrea,

I am a newby here but I just wanted to tell you that we have an apothecary here and PM anesthesiologist prescribed lidocaine,ketamine and something else with N as a gel 30/30/30 it worked somewhat on the painful senstations on the skin. It could only be put on 3X a day. I found in early stages it worked the best. was not covered by insurance and a little pricey. let me know if you want more info. I would be glad to get it for you. Good luck with your schooling, I hope you are able to nip the symptoms in the bud, take care

debbie
info hungry is offline   Reply With QuoteReply With Quote
Old 03-05-2009, 04:15 PM #3
dreambeliever128's Avatar
dreambeliever128 dreambeliever128 is offline
Magnate
  
Join Date: Nov 2006
Posts: 2,088
15 yr Member
dreambeliever128 dreambeliever128 is offline
Magnate
dreambeliever128's Avatar
 
Join Date: Nov 2006
Posts: 2,088
15 yr Member
Default HI Andrea,
You might be right on the lidocaine patches. It probably depends on where the pain level is that they help. I wore 3 at a time for the longest time. They stuck ok for me.

As far as the heating pad. You may just need to get you another one and let your cat have her way on the old one. LOL

Ada
dreambeliever128 is offline   Reply With QuoteReply With Quote
Old 03-05-2009, 07:02 PM #4
DianaA's Avatar
DianaA DianaA is offline
Member
  
Join Date: Jun 2007
Posts: 329
15 yr Member
DianaA DianaA is offline
Member
DianaA's Avatar
 
Join Date: Jun 2007
Posts: 329
15 yr Member
Help Just a reminder
I know you probably know this, but just a reminder....Keep the Fentanyl patches away from heat. It can be deadly, because it distributes the drugs too fast. Just a friendly reminder. I had the 100mg Fentanyl patches and removed them before getting in my hot tub. Just be safe. You know I care. Talk to you soon. Di
DianaA is offline   Reply With QuoteReply With Quote
Old 03-05-2009, 07:27 PM #5
angelrsd's Avatar
angelrsd angelrsd is offline
Member
  
Join Date: Dec 2008
Location: murfreesboro tn
Posts: 500
15 yr Member
angelrsd angelrsd is offline
Member
angelrsd's Avatar
 
Join Date: Dec 2008
Location: murfreesboro tn
Posts: 500
15 yr Member
Default
andrea

i am so sorry that the pain has come back i would try the blocks also and like di said be carefull with the heat and the fentanyl patchs . i hope that they are able to stop its from spreading or anything. it must of been great to be pain free for that long i dont remeber what it was like before rsd lol

carrie
angelrsd is offline   Reply With QuoteReply With Quote
Old 03-05-2009, 07:33 PM #6
Debby's Avatar
Debby Debby is offline
Member
  
Join Date: Aug 2006
Location: N CA
Posts: 365
15 yr Member
Debby Debby is offline
Member
Debby's Avatar
 
Join Date: Aug 2006
Location: N CA
Posts: 365
15 yr Member
Default
Andrea,
I am sorry to hear it is starting roar again. I am glad that you were fortunate enough to get alteast 2 months relief & am glad that it hasn't come back roaring at all the places it could. Keeping my fingers crossed................

DebbyV
Debby is offline   Reply With QuoteReply With Quote
Old 03-06-2009, 06:03 PM #7
dennyfan dennyfan is offline
Member
  
Join Date: Sep 2008
Location: Oregon
Posts: 133
15 yr Member
dennyfan dennyfan is offline
Member
 
Join Date: Sep 2008
Location: Oregon
Posts: 133
15 yr Member
Default
Andrea, I am sorry your symptoms have returned. I hope they stay just in the one area & do not return to everywhere you dealt with before. I just noticed that you are from Santa Cruz. Thats my old stomping ground. I was raised in Watsonville. I still come down there at least once a year to visit all my family. I love it there. I moved to Oregon almost 20 years sgo though to raise my son. Here we could afford our own home & raise him without some of the problems faced there. It was a good choice though I still miss "home". I guess I am still a California girl at heart. I am thinking of you. Good luck in school & I hope you can do your treatments soon so you get back to being pain free.
Hugs, Denny
dennyfan is offline   Reply With QuoteReply With Quote
Reply

« Previous Thread | Next Thread »
Thread Tools
Display Modes
Hybrid Mode Hybrid Mode

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
I have returned... mrsD Peripheral Neuropathy 17 09-08-2008 09:34 AM
MonSter Attack!!! Friend2U Multiple Sclerosis 24 07-13-2008 10:36 PM
This whole RSD/CRPS monster SUX not2happy Reflex Sympathetic Dystrophy (RSD and CRPS) 11 04-10-2008 11:29 PM
Monster in a Wheelchair BobbyB ALS 3 07-28-2007 04:27 PM


All times are GMT -5. The time now is 02:21 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

All posts copyright their original authors.

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.

Always consult your doctor before trying anything you read here.

Home