Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 03-03-2009, 10:00 PM #1
angelrsd's Avatar
angelrsd angelrsd is offline
Member
 
Join Date: Dec 2008
Location: murfreesboro tn
Posts: 500
15 yr Member
angelrsd angelrsd is offline
Member
angelrsd's Avatar
 
Join Date: Dec 2008
Location: murfreesboro tn
Posts: 500
15 yr Member
Thumbs up Welcome all new comers

hi i just wanted to welcome all the newcomers to the forum. glad to see you here and sorry that you have this monster. i know its been alittle slow around here lately just ask away.

carrie
angelrsd is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Curious (03-04-2009), love2laugh (03-04-2009)

advertisement
Old 03-04-2009, 12:17 AM #2
DianaA's Avatar
DianaA DianaA is offline
Member
 
Join Date: Jun 2007
Posts: 329
15 yr Member
DianaA DianaA is offline
Member
DianaA's Avatar
 
Join Date: Jun 2007
Posts: 329
15 yr Member
Default

Quote:
Originally Posted by angelrsd View Post
hi i just wanted to welcome all the newcomers to the forum. glad to see you here and sorry that you have this monster. i know its been alittle slow around here lately just ask away.

carrie
Hi Carrie,
Although I am not a newcomer, and with my 20 year Anniversary of CRPS in July, .....I couldn't resist dropping in and saying "Hello" to you. I hope this post finds you well.
I think the welcome to newcomers is a great way to open the door for conversation. Take care Carrie and a cheerful welcome to any newcomers.
Di
DianaA is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
angelrsd (03-04-2009), Curious (03-04-2009)
Old 03-04-2009, 08:22 PM #3
angelrsd's Avatar
angelrsd angelrsd is offline
Member
 
Join Date: Dec 2008
Location: murfreesboro tn
Posts: 500
15 yr Member
angelrsd angelrsd is offline
Member
angelrsd's Avatar
 
Join Date: Dec 2008
Location: murfreesboro tn
Posts: 500
15 yr Member
Default

thanks di
hope that all that are new are finding there way. hope to talk soon

carrie
angelrsd is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Curious (03-04-2009)
Old 03-04-2009, 10:14 PM #4
dreambeliever128's Avatar
dreambeliever128 dreambeliever128 is offline
Magnate
 
Join Date: Nov 2006
Posts: 2,088
15 yr Member
dreambeliever128 dreambeliever128 is offline
Magnate
dreambeliever128's Avatar
 
Join Date: Nov 2006
Posts: 2,088
15 yr Member
Default Hi Girls,

I too am not a newcomer but I just wanted to say hi to both of you and to welcome the newcomers.

We all need help at one time or another so I am hoping we can help any of you in any way. Even the old timers.

Ada
dreambeliever128 is offline   Reply With QuoteReply With Quote
Old 03-04-2009, 10:42 PM #5
info hungry info hungry is offline
Junior Member
 
Join Date: Mar 2009
Posts: 41
15 yr Member
info hungry info hungry is offline
Junior Member
 
Join Date: Mar 2009
Posts: 41
15 yr Member
Default

Thank y'all for welcoming. I have been looking back a little and researching. Thank you for being here!
debbie
info hungry is offline   Reply With QuoteReply With Quote
Old 03-04-2009, 11:06 PM #6
angelrsd's Avatar
angelrsd angelrsd is offline
Member
 
Join Date: Dec 2008
Location: murfreesboro tn
Posts: 500
15 yr Member
angelrsd angelrsd is offline
Member
angelrsd's Avatar
 
Join Date: Dec 2008
Location: murfreesboro tn
Posts: 500
15 yr Member
Default

hi debbie and welcome to the group
hope that we can answer any question for you or you can help us
carrie
angelrsd is offline   Reply With QuoteReply With Quote
Old 03-06-2009, 11:40 PM #7
rsdwife rsdwife is offline
Junior Member
 
Join Date: Mar 2009
Location: Oregon
Posts: 28
15 yr Member
rsdwife rsdwife is offline
Junior Member
 
Join Date: Mar 2009
Location: Oregon
Posts: 28
15 yr Member
Default new to community

My husband was involved in an accident in May of last year. His original diagnois was left shoulder/thoratic sprain and left wrist sprain. Since about September of last year, and 4 doctors later, his pain managment dr diagnosed CRPS. We are now at a stand still waiting for the workmans comp company to decide whether or not they will accept this condition. Today, his left had was so swollen and purple that his nails started to turn black. He went into the ER, where they gave him a shot of some strong meds and doing an ultra sound to ensure there were no blood clots and sent him on his way. The ER doctor had to look up CRPS to see what it was all about. After being home and laying back in the recliner with his hand over his head, he his fingernails were no longer black, the swealing and purple color is always there however. Our lawyer is trying everything he can to try and get this approved so my husband can have a spinal cord stimulator trial. If he has to try and control pain with meds (which do not give him much relief) he will no longer be able to drive for a living since he will loose his cdl. We are still having a hard to accepting how diabling this is. I have read over this board for many months, but just now feel like I can post our story... it's nice to know we are not alone...
rsdwife is offline   Reply With QuoteReply With Quote
Old 03-07-2009, 02:17 PM #8
dreambeliever128's Avatar
dreambeliever128 dreambeliever128 is offline
Magnate
 
Join Date: Nov 2006
Posts: 2,088
15 yr Member
dreambeliever128 dreambeliever128 is offline
Magnate
dreambeliever128's Avatar
 
Join Date: Nov 2006
Posts: 2,088
15 yr Member
Default Hi RSDwife,

Welcome to the group.

Sorry to hear about your husband. WC is always a time consuming way of getting treatment unfortunetly.

Very few Drs. seem to know about RSD so it is a hard one to get the help for but they are out there. Hopefully he will get the help he needs soon.

Ada
dreambeliever128 is offline   Reply With QuoteReply With Quote
Old 03-08-2009, 02:15 PM #9
angelrsd's Avatar
angelrsd angelrsd is offline
Member
 
Join Date: Dec 2008
Location: murfreesboro tn
Posts: 500
15 yr Member
angelrsd angelrsd is offline
Member
angelrsd's Avatar
 
Join Date: Dec 2008
Location: murfreesboro tn
Posts: 500
15 yr Member
Default

rsdwife
i am so sorry that your husband has RSD. like ada alot of docs have no clue about rsd and treat us like we are crazy or worse. i really hope that you are able to get the attorny to get the approval for SCS, i have the horrible color changes and raising that limb seems to help it be not so black. but i dont have the huge out of porportin swelling like most mine is only a little bit of swelling compared to must. i have had rsd for 11yrs and it is full body and internal. i really hope that they can get this under control.
has your husand had anyblocks or any other treatments for his rsd
angelrsd is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off



All times are GMT -5. The time now is 06:54 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.