Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 03-07-2009, 08:59 PM #1
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lostmary lostmary is offline
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lostmary lostmary is offline
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Join Date: Apr 2007
Location: fredericksburg, Virginia
Posts: 459
15 yr Member
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Hi,

I'm so sorry it is spreading so fast. A couple of ideas. I'm throwing them out in no special order. I take 100 mg of topomax. 50 doesn't work. 100 is much better for the burning pain. It really works well for me. see if doc will increase it. 2nd. I've had 2 scs. I'm going to look into the morphine pump. what you could do is contact either medtronics or st jude. they are the main companies that make the units. See if they have any trials going, (I heard they do). They will pick up the full tab for you if they have something going. Call and ask. THe worse that can happen is that they say they don't. Ask hospitals, drs. etc to see what is available for charity. They all have them out there. Just some quick thoughts. I hope they help

Hugs
Mary
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