Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 03-08-2009, 12:13 PM #1
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Originally Posted by Imahotep View Post
I get it too.

I used to be able to will an itch away. Indeed I can even make something itch and then stop it by thinking about it, but not this itch. It's mainly in two places. The one I'm more comfortable talking about is my upper back. I have to go at it with a bread knife to stop it but it usually works for an hour or two. It's on a pretty tight schedule really and mainly gives me trouble at night. When I'm getting readdy for bed is the worst. If I try to make it stop it gets an ugly pain and the area feels like dead meat. I've never gone past this stage without scratching it. It is in the affected area.

For a while I thought that perhaps it became more sensitive to heat and it was being burned in the shower but cooler water hasn't helped.
Mine is all day, it hasn't woke me up but the RSD pain does, it is my whole body and head. I have done everything I can think of...I tried prednisone, benadryl, different detergents, stopped pain pills for two days, (that was fun) its like it is itching from the inside out...it doesn't stop but I have read the RSD can do that..I have an appointment Friday, hopefully, the doctor can give me something...hopefully, gee, another pill to add to my collection!
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Old 03-08-2009, 12:41 PM #2
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I think I replied to this in another thread but I will reply again anyhow.

I also get the itching. I spoke to my Pain Management Doctor about it a few months ago when it first started happening and he said that unfortunately, it is a pretty common symptom of RSD although not everyone gets it.

Have you ever tried Anti-Isthamines (sp?)?? My Doctor suggested that I tried them as they can be useful. I tried them and they helped a little so maybe they will help you also? Also, check the side effects of any meds that you are on as some side-effects to medications can be itching ... I know my oral Ketamine causes me to itch a lot when I take it sometimes.

From what I have been told by my PM Doctor, there aren't really any medications that help with the itching - the best things are allergy tablets etc. I get the itching all over my body although it is worst in my RSD limbs (my left leg, right arm and possibly left arm also).

I wish I could help you more but please just know that you aren't alone and that I DO understand what you are going through and how annoying and embarrassing it is!! If you ever want to talk, please know that I am here for you!

Good Luck with your appt on Friday - I hope you can get some answers and please keep us updated when you can!!
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Old 03-08-2009, 01:34 PM #3
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pepper
hi hun i know about the itching all to well. the best combo for me is pepsid and benedryl the pepsid is a histamine blocker also i would ask about that . make sure to take the benedryl ever 4 hrs . have you tried any of the cortizone creams or oatmeal baths or even cornstarch works for me too . i know the itching drives me bonkers !!! maybe this will help
i hope

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Old 03-08-2009, 01:58 PM #4
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pepper
hi hun i know about the itching all to well. the best combo for me is pepsid and benedryl the pepsid is a histamine blocker also i would ask about that . make sure to take the benedryl ever 4 hrs . have you tried any of the cortizone creams or oatmeal baths or even cornstarch works for me too . i know the itching drives me bonkers !!! maybe this will help
i hope

carrie
Hi, do you mean Pepsid for your stomach?? I do take benedryl 3 or 4 times a day, even with my other pills...I told my cousin (he lives with me) yesterday, I took a pain pill, a nerve pill and and a prednisone just in case I died...lol...I sit with a sheet over my legs because my dogs LOVE to lick off whatever I put on my legs..even Gold Bond spray...they Love it...so now I resorted to a sheet...I also tried an oatmeal body sauve (sp) I'm going to continue with the prednisone and benadryl until I go to the doctor...Thanks, it good to have a fellow "itcher" but I feel bad that you are going through it... ps: does you head itch also???
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Old 03-08-2009, 04:31 PM #5
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Quote:
Originally Posted by Martg1946 View Post
Hi, do you mean Pepsid for your stomach?? I do take benedryl 3 or 4 times a day, even with my other pills...I told my cousin (he lives with me) yesterday, I took a pain pill, a nerve pill and and a prednisone just in case I died...lol...I sit with a sheet over my legs because my dogs LOVE to lick off whatever I put on my legs..even Gold Bond spray...they Love it...so now I resorted to a sheet...I also tried an oatmeal body sauve (sp) I'm going to continue with the prednisone and benadryl until I go to the doctor...Thanks, it good to have a fellow "itcher" but I feel bad that you are going through it... ps: does you head itch also???
yes pepsid for stomach is acutally hestimine blocker that helps block the allergic reaction i got it thro prescription 2 mths ago for a severe allergic reaction and prednisone and benadrly it literaly took 3-5 days for it to stop the itching.but it did help i also use the gold bond extremt healing lotion with the shea butter for my skin and the itching and i also have the skin lessions on my arms and legs
maybe this will help
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Old 03-11-2009, 10:27 PM #6
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yes pepsid for stomach is acutally hestimine blocker that helps block the allergic reaction i got it thro prescription 2 mths ago for a severe allergic reaction and prednisone and benadrly it literaly took 3-5 days for it to stop the itching.but it did help i also use the gold bond extremt healing lotion with the shea butter for my skin and the itching and i also have the skin lessions on my arms and legs
maybe this will help
Thanks for the advice...now I have another question...(sorry) what do the skin lessions look like, on the pictures on the site, they look brown but I have red spots I've never had b4 on my arms but they aren't raised or sore..do they just develope at any time??
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Old 03-11-2009, 10:34 PM #7
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the rash/lesion on my arms and legs are red raised almost a ruff texture to them and itch to death. i got rsd from injuries form a car accident in 98. the rash does get sore to even touch


sue percoset does the same thing to me but i have to take phenergan on top of it to stop the vommiting that goes with it. glad your around sue.. hope to talk more
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rsd DX 99 had since 98 full body and organ involement,fibro ,pelvic pain ,etc,,,,,,




please check out our website to help bring awareness to RSD!


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Old 03-08-2009, 02:04 PM #8
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Originally Posted by ali12 View Post
I think I replied to this in another thread but I will reply again anyhow.

I also get the itching. I spoke to my Pain Management Doctor about it a few months ago when it first started happening and he said that unfortunately, it is a pretty common symptom of RSD although not everyone gets it.

Have you ever tried Anti-Isthamines (sp?)?? My Doctor suggested that I tried them as they can be useful. I tried them and they helped a little so maybe they will help you also? Also, check the side effects of any meds that you are on as some side-effects to medications can be itching ... I know my oral Ketamine causes me to itch a lot when I take it sometimes.

From what I have been told by my PM Doctor, there aren't really any medications that help with the itching - the best things are allergy tablets etc. I get the itching all over my body although it is worst in my RSD limbs (my left leg, right arm and possibly left arm also).

I wish I could help you more but please just know that you aren't alone and that I DO understand what you are going through and how annoying and embarrassing it is!! If you ever want to talk, please know that I am here for you!

Good Luck with your appt on Friday - I hope you can get some answers and please keep us updated when you can!!
Hi, I have tried EVERYTHING that a know of or can think of, I even take Prednisone (don't help) ..what is Katamine for, haven't tried that yet??
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Old 03-08-2009, 02:13 PM #9
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Ketamine is a VERY strong pain medication that Doctors will only usually prescribe as a last resort if nothing else has helped. My Pain Management Doctor was very afraid to try Ketamine because of my age (i'm only 14) but felt it was needed as a last resort. It has been the only med that reduces my pain but even then it only takes my pain from a 8 and a half to a 6 and a half.

Lots of drug addicts take Ketamine which is why doctors are usually hesitant to prescribe it. It is called Special K on the streets from what my Doctor has told me. It does have very good results for some people with RSD though and lots of people have Ketamine Infusions or Ketamine Coma if their RSD is really severe.
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Old 03-13-2009, 03:45 AM #10
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Quote:
Originally Posted by Martg1946 View Post
Hi, I have tried EVERYTHING that a know of or can think of, I even take Prednisone (don't help) ..what is Katamine for, haven't tried that yet??
One thing my daughter used was preperation-H, it has lidoderm in it to numb. One thing I would suggest, in her case one of the medications made the bile duct sluggish in draining the gall bladder it, blocked cause liver failure.

To rule out liver problems have some blood work done. Before she was jaundice the itching had been going on for several months.
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