Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 03-09-2009, 08:17 PM #1
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Julie,
You sound a lot like me. Mine also spread thinks to the scs. THe second one only made it worse. I'm now thinking of having the pain pump. If the scs isn't working for you, and you're not happy with it, you can always have it taken out. In many ways, even tho it caused the rsd to spread, I really feel so much better and freer without it. I don't know if that make any sense. I've heard that the pain pump allows you to be so much more active then the scs. I just don't know about another surgery. I've got horses, dogs, cats, so they are the reasons that I get out of bed. If it weren't for them I wouldn't have to, so I know how you feel. Just remember, we are here for you.

mary
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Old 03-09-2009, 08:30 PM #2
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hi all
julie iam so sorry that your pain is so bad gentle hugs to you hun you guys were talkin about the pump i have had it for 5 yrs now and it has helped me alot dont get me wrong it is a big surgery but it has helped me out tons. i have fentanyl in it not morphine ask any questions you want i will answer them if you like

carrie
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hope this finds all in less pain
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rsd DX 99 had since 98 full body and organ involement,fibro ,pelvic pain ,etc,,,,,,




please check out our website to help bring awareness to RSD!


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Old 03-09-2009, 09:24 PM #3
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Default Hi Julie

Hi Julie and welcome to the forum. I had three series of SGB, 10 in each series. Now, that has been a while since I was first diagnosed in 1989. But I clearly remember getting relief from them. I hope you too find some relief. Now, my treatment is HBOT. Welcome, and I hope you have great results and get some much needed relief. Keep us posted. Di
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