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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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Two weeks ago I had a bone scan, my new pain doctor wanted to find out what stage RSD I was in, since it was not in any of my medical records from the past 7 yrs with the previous pain doctor.
So off I go to this bone scan. It took about 5 hours total. By the time I was finished I was worn out and hurting all over. This past Wednesday I went back for the results. He said from what he could tell from my medical records and the bone scan, I was stage 2 RSD. I was like ok, this is good, better than stage 3 at least...ya know? So he said...well there is something more serious going on though, and I am extremely worried about this. I was like what could be worse than stage 2 RSD? Ya know? He said, in my shoulders, upper back, hips, knees and left ankle...(the left ankle bein the worst of all) ... I have Rheumatiod Arthritis! Where did this come from? I tell ya, I've been stressed and flipppping out ever since.... But something about this makes sense to me....Back a few years ago I had the SCS Trial, and normally...(I am so not normal!) it takes 1 lead, 30 minutes to get it in, and your outa there, mine took over 50 attempts and 5 epidurals later....6 1/2 hours...to get one lead in...and the doc made a comment, stating I had so much scar tissue in my spine, he had a hard time getting that lead in there......welll...I've never had a back injury, nor surgery on my back..ummm nothing.... So would this Rheumatiod Arthritis cause scar tissue in my spine like this? My upper back just kills me...til I can't stand it most days. Think this would be why? Back when I was 15, I had problems with leg cramps, and walking. I was taken to a doctor, and I happen to have the medical records still. My mom saved them over the years. One comment in there is "inflamatory rheumatic syndrome" and that I had a positive ANA, which is some blood work used to DX rheumatroid arthritis. Any opinions on this? Thanks Debbie |
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