Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 03-09-2009, 10:41 PM #1
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Originally Posted by Dubious View Post
Hi all,

I originally started with CRPS II in my right arm, hand and shoulder due to a shoulder surgery gone bad. I am sure you all know the know of pain that is associated with it. Then I had a left sided hip surgery and after that, put my right foot in hot bath water and now my ankle hasn't stopped burning since. That was in December. Then, in the last 2 weeks, the incision on my left hip hurts and itches and the top of my left foot is burning too.

My pain doc is out of town for the next 3 weeks, my HMO tells me my PCP can see me in 3 weeks, I am feeling out of luck and not sure what to do. My right arm has been swelling, my right hand turning red, sometimes blue and blotchy white. It keeps me up all night; I am tired and running on empty.

Has anyone seen or felt this before? It is driving me crazy and I am getting very depressed.
Hi Dubious,

I am also pretty new here and wanted to give you some comfort. I feel bad you have to wait three weeks. It is most hard when you are in so much discomfort. It sounds like a really bad flare........is there an alternative doc you could go see. My Rsd is not in flare but I remember how painful and all the different symptoms that were happening were frightening and extremely painful. Do you have meds? I wish there was something I could do for you right now..........this most likely can't help you now but one thing i did to keep calm was learn self hypnosis. I went to a specialist in our town and it took three times @ 60$ ea. I still use it today. I used it every time I went for treatment as Hospitals make me crazy. It takes practice. Mostly I hope you can have some comfort now though. When I feel depressed I also do slow deep breaths difficult when in pain I know. Please take care and maybe in am you can call your clinic again. Don't be afraid to tell them you need to be seen.....preferably by an RSD/CRPS knowledge person. feeling bad can you go to your ER or urgent care facility?

Wishing your pain away,

Debbie
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Old 03-09-2009, 11:04 PM #2
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Default Hi,

I would try the ER as Debbie said.

Also call the Drs. office tomorrow and tell them you can't wait 3 weeks. Maybe you could see the PA in the office if your PCP is not available.

You might try taking baths in epsoms salts and also sleep with a heating pad on the area in pain.

I started out with RSD in my right arm and hand due to TOS surgery and Rotator cuff surgery. I also have it in my right foot up to my hip.

I can't use hot water for my bath. It just makes my pain worse. My water has to be just warm.

My RSD made my depression much worse. I have had it all my life but when I got RSD the depression just went off of the charts. I have been in councelling to help me deal with the pain. I have been hypnotised, I also was taught meditation.

It sounds like the RSD is spreading. It does spread into injuries or surgery areas. If you have to have anymore surgeries ask for a block before you have it. Nowadays the hospitals are pretty well sat up for blocks before surgeries.

I know you had said you had some blocks, can you see about getting more?

Hope you start feeling better soon.

Ada
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