Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 03-10-2009, 05:37 AM #1
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I am SO sorry to hear that your RSD is spreading, Dubious and that you can't get to see any doctor for at least 3 weeks - that must be very frustrating and I guess I am "lucky" that my Doctor can usually get me in to see him within a day or so because of the severity of my symptoms and the fact that he works all the time, other than school holidays and even then they have someone to cover for my Doctor. It seems as though a lot of people are suffering from spreads at this time of year - I really hope that you start feeling better real soon and that you get some much-needed help and pain relief!

I really wish that I could help you and take your symptoms away but I know I can't unfortunately. Just know that I care about you and am here for you if you need to talk and DO understand some of what you are going through!!

I like everyone elses suggestion of going to the ER. If the pain is really bad, I would definitely go to the ER and see if they could give you anything to help with the pain - I know you probably don't like going but you shouldn't have to suffer from anymore pain than you already do!!!

I know it is really hard and painful but please try and move your affected limbs as much as possible. I'm sure you know this but it is extremely important to keep moving your RSD limbs as much as possible so that the circulation doesn't become any worse than it may already be. I have some exercises that my PT's gave me that you can do at home that might help if you would like me to send them to you.

Also, I KNOW it is really hard but please try and keep positive and get rid of any stressful situations that might be going off in your life right now. Stress is only going to make your pain and other symptoms worse.

Take care and know that I am thinking about you and if you need anything, I am here for you. Please keep us updated and I hope that you can get to see your Doctor and get some pain-relief real soon!!
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Old 03-10-2009, 07:25 AM #2
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hey dubious
i am so sorry that your rsd is horrible right now. like the others i would 1. go to Er 2. call and see if you can get in earlier or maybe the epsom salts in the bath will help. i try to make the water as hot as i can make and sit as long as i can .
i wish that there was something that i could
hang in there buddy !!!!
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rsd DX 99 had since 98 full body and organ involement,fibro ,pelvic pain ,etc,,,,,,




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