Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 03-13-2009, 05:42 PM #1
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Originally Posted by MominPainRSD View Post
Yikes.....the only meds I am on right now are Cymbalta and Zanaflex and Klonopin and Seroquel (the last three I take in the evening or before sleep). I'm going to give it a few more days of being off the Topomax of assuming the BP is from the Cymbalta. That would suck, because I have to think it is helping with the pain (please??? maybe???? just a little???).

Ironically, my feet are not burning as badly today but the REST of me is. I feel badly sunburned all over (NOT as bad as the feet thing usually is). My head hurts ALL the time. I'm sick of meds. I'm ready to come off of all of them. I don't believe anything works.

Oh, and I don't take ANY pain meds regularly. I only take them when I get desperate. I thank you all for your suggestions. We'll keep some of the stuff you suggested in the car along with some bags just in case they don't work! (yuck).
Zanaflex is related to clonidine...and they both reduce blood pressures. (about 30% of Zanaflex users get lowered pressure)
http://www.drugs.com/pdr/zanaflex.html

If blood pressure is a concern, I suggest you invest in a blood pressure cuff...the manual ones are only about $20.

Motion sickness/dizziness may be independent of blood pressure. It may be central in the brain, connected to the
semi-circular canals of the inner ear.

High blood pressure does not give symptoms typically unless very high. Some people who have high blood pressure can feel a pressure in the chest when it goes up, but that is very selective. Fluctuations can be felt, and the drops are more obvious than the rises in general.
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MominPainRSD (03-14-2009)
Old 03-13-2009, 06:16 PM #2
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Dear Mominpain,

I just posted the following information for Dubious and thought I would post it here for you too in case you missed it. Please excuse my post if you have read it. I thought of you too when I read the following excerpt from an article published in the latest issue of the Pain Monitor.


Quote:
Breaking the Pain Cycle

Can a specialist retrain the brain not to feel pain?

“CRPS can sometimes be viewed as a futile cycle. There is some thought that if we are able to put the brakes on this cycle — even if for a short period — you [could] alter the course of disease and even stop it,” Maine says, adding that psychological therapy and counseling can sometimes help the process, as can modalities such as biofeedback and guided imagery. Evidence does exist that retraining can help to diminish or desensitize the person to the perception of pain, Napier says.

“When chronic pain has been endured, learned painfulness can occur. The person needs to re-experience movements without the expectation, and sometimes self-fulfilling prophesy, of pain. Pain is a strong deterrent from continuing movement, and retraining may need to occur to reinforce that movement can occur without the anticipated pain response,” she concludes.

Joanne Eglash is a medical writer for the Gannett Healthcare Group.
I believe it is possible to break this pain cycle, the trick is in finding the right combination of treatments to interrupt the pain signals to give you a break. What this author is suggesting here is not as quick as just taking a pain pill, not that most of the pain pills even touch most RDS pain, but in the long run if one can learn how to retrain your brain it is very beneficial in managing rsd.

I hope you have been able to find some relief.

MsL
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