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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#21 | ||
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What you are going through is very normal. Your husband sees the person he loves hurting and he doesn't know what to do to help. Your daughter is 13 and that can be a tough age my daughter was 15 when I was DX she is 21 now. Explain RSD to her and try to help her understand the RSDS.org website is a good source of information. The pain is changing all aspects of your life it causes changes you may not even be aware of but your family is. The added expense of a chronic condition is expensive and it doesn't help when the economy is making more stress. So do as much listening as talking with your daughter and husband. If you are close to a Y check into water walking it really helps me. Some Y's offer scholorships for members to assist with the monthly fee. The cool water really helps with the burning in my skin and the exercise is a great stress reliever. Check to see if you can do mail in (non narcotic drugs only) depending on your insurance policy you could get 3 months of prescriptions for the price of one month. In Ohio we have several chain stores with pharmacies that offer generic drugs for 4.00 month. Some of the newer meds used for RSD don't have generics yet. I know staying at home by yourself can get old. When the weather is nice take a walk outside or just hang out in the yard. Grow some flowers (when the weather gets nice and pain will allow) it will give you something to do and it will get you outside. Don't keep anything to yourself if it is causing you to feel bad. Talk to your doctor that's what you have him/her for. Screaming into your pillow is like having a good cry sometimes it just feels good. When you let your emotions consume you it's time to talk to your doctor, spouce and daughter. DO NOT ALLOW YOUR HEALTH TO DEFINE WHO YOU ARE AS A PERSON. I find that daily visits in prayer with God are as much help as pills in a bottle. If you don't have a personal relationship with God now is the time to start one. You can always come here and say as much or as little as you would like. I hope tomorrow is a better day for you, Sbowling |
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#22 | ||
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Junior Member
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Not only has my RSD spread from my rt foot and ankle to my lt foot and ankle, but it's moved up my rt leg to my knee and thigh, and also up my lt leg almost up to my knee. There's no rhyhme or reason to when or if my so-called "good" left leg is sudden going to stop working. I've decided to undergo the trial of SCS, even though I have a history of things in/on/around my spine not working. I'm almost a year into this mess now, so if it's going to work -- now is the time. Best of luck to you. Word Up!
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#23 | ||
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Member
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I want to thank everyone for the responses and for all your caring. Right now I really need that. I am going through such a rough time. I woke up yesterday having a really bad day. I woke up having my left limbs in so much pain it was hard to put to much weight on my foot. I looked at my foot and noticed it starting to shine on the top and I asked my daughter if it looked any different to her and she screams mom it is shiny. My right side hurt as usual, but the left side was in so much pain I wanted to scream. I woke up this morning with my left lower leg and my left hand and arm still hurting.Not only was that happening but my palm feels like someone is just taking a torch to it and just burning the crap out of it as well as my toes. The back of my left shoulder is now hurting like crazy and sometimes it hurts to breathe in due to the pain in my shoulder. So instead of feeling a little better I am feeling worse. Are these feelings normal for rsd? Can one side of your limbs hurt so bad that you don't want to use them and the other side still hurt but not as bad? All I know is I am very scared. I did call my family doc and let them know and they are referring me to a neurologist. So I got to sit and wait. I do have a feeling it is probably rsd in my legs and it is just acting up on one side and then will eventually go to the other side. I am not sure but it is just a feeling I have. Please help me and let me know if what is happening with my legs is normal or not. I would really appreciate some responses so I know if my guessing may be accurate or not. Thank you all again for being here for me. You are all a Godsend. Thanks again.
Sincerely, Tracy Tracy(screwballpookie) |
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