Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

Reply
 
Thread Tools Display Modes
Old 03-15-2009, 09:32 PM #1
GalenaFaolan's Avatar
GalenaFaolan GalenaFaolan is offline
Member
 
Join Date: Dec 2006
Location: Florida
Posts: 445
15 yr Member
GalenaFaolan GalenaFaolan is offline
Member
GalenaFaolan's Avatar
 
Join Date: Dec 2006
Location: Florida
Posts: 445
15 yr Member
Default

I don't consider your spread "weird". LOL It's called mirror and continuity type spread. Mine went left leg to right,then left arm to right. Hey, did we spread the same? LOL There is also independent type spread that jumps from say leg to an arm.

Ok, lesson over. LOL Everybody has spread in a different way. Some will have color,temp changes and of course pain right away. Others won't have any changes just pain. There really is no "normal" or "right" way for it to spread. For me, I had the pain,color and temp change right off. The sensitivity to air came later. When it went into my arms it was just pain but no color or temp changes at all. That came about 2 years later. I guess I had it both ways. LOL I only had sensitivity to air for the first 3 yrs then developed sensitivity to touch 3 years ago. I wish that one had stayed away!

I don't know why your left leg is doing this but I find it kind of odd that 2 days after you take the valtrex this pops up. It doesn't say that it's a side effect but no one knows how drugs affect everyone either! Is it just a coincidence or what? I also read about the med too that you need to take it within the first 72 hours of getting the shingles rash and if taken after that the medication may not be effective at all. Thought I'd let you know about that one. I don't know when you got the shingles rash and all.

Hugs,

Karen
__________________
Laugh until you cry, don't cry until you laugh.

Living, loving and laughing with RSD for 14 years and counting.
GalenaFaolan is offline   Reply With QuoteReply With Quote
Old 03-16-2009, 12:06 AM #2
Martg1946 Martg1946 is offline
Junior Member
 
Join Date: Mar 2009
Location: Florida
Posts: 32
15 yr Member
Martg1946 Martg1946 is offline
Junior Member
 
Join Date: Mar 2009
Location: Florida
Posts: 32
15 yr Member
Default

Quote:
Originally Posted by GalenaFaolan View Post
I don't consider your spread "weird". LOL It's called mirror and continuity type spread. Mine went left leg to right,then left arm to right. Hey, did we spread the same? LOL There is also independent type spread that jumps from say leg to an arm.

Ok, lesson over. LOL Everybody has spread in a different way. Some will have color,temp changes and of course pain right away. Others won't have any changes just pain. There really is no "normal" or "right" way for it to spread. For me, I had the pain,color and temp change right off. The sensitivity to air came later. When it went into my arms it was just pain but no color or temp changes at all. That came about 2 years later. I guess I had it both ways. LOL I only had sensitivity to air for the first 3 yrs then developed sensitivity to touch 3 years ago. I wish that one had stayed away!

I don't know why your left leg is doing this but I find it kind of odd that 2 days after you take the valtrex this pops up. It doesn't say that it's a side effect but no one knows how drugs affect everyone either! Is it just a coincidence or what? I also read about the med too that you need to take it within the first 72 hours of getting the shingles rash and if taken after that the medication may not be effective at all. Thought I'd let you know about that one. I don't know when you got the shingles rash and all.

Hugs,

Karen
I just sent you a really long message and it disappared, I'm hoping I sent it to you and didn't know I did it...I did have pm figured out and now I forgot how to do it...thank god I'm a blond and can get away with stuff like that ..Please let me know if you got it...thanks,Papper
Martg1946 is offline   Reply With QuoteReply With Quote
Old 03-16-2009, 07:45 PM #3
GalenaFaolan's Avatar
GalenaFaolan GalenaFaolan is offline
Member
 
Join Date: Dec 2006
Location: Florida
Posts: 445
15 yr Member
GalenaFaolan GalenaFaolan is offline
Member
GalenaFaolan's Avatar
 
Join Date: Dec 2006
Location: Florida
Posts: 445
15 yr Member
Default

Quote:
Originally Posted by Martg1946 View Post


I just sent you a really long message and it disappared, I'm hoping I sent it to you and didn't know I did it...I did have pm figured out and now I forgot how to do it...thank god I'm a blond and can get away with stuff like that ..Please let me know if you got it...thanks,Papper
No pm's! I think it got lost. If you can send another I'm sure it'll go through this time.

Hugs,

Karen
__________________
Laugh until you cry, don't cry until you laugh.

Living, loving and laughing with RSD for 14 years and counting.
GalenaFaolan is offline   Reply With QuoteReply With Quote
Old 03-16-2009, 12:06 AM #4
angelrsd's Avatar
angelrsd angelrsd is offline
Member
 
Join Date: Dec 2008
Location: murfreesboro tn
Posts: 500
15 yr Member
angelrsd angelrsd is offline
Member
angelrsd's Avatar
 
Join Date: Dec 2008
Location: murfreesboro tn
Posts: 500
15 yr Member
Default

mine when it spread was horrible each time it would get worse with each spread. pain the whole nine yards. but mine spread to all limbs and face in 6mths so dont go by me. im a freak of nature LOL
__________________
hope this finds all in less pain
.



rsd DX 99 had since 98 full body and organ involement,fibro ,pelvic pain ,etc,,,,,,




please check out our website to help bring awareness to RSD!


.
angelrsd is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Spreading RSD - not sure what to do?? Dubious Reflex Sympathetic Dystrophy (RSD and CRPS) 16 03-13-2009 06:05 PM
RSD and spreading? sue k Reflex Sympathetic Dystrophy (RSD and CRPS) 5 09-01-2007 12:03 AM
How do I know if my RSD is spreading Bronco4586 Reflex Sympathetic Dystrophy (RSD and CRPS) 4 04-24-2007 09:44 AM
rsd spreading,,,, moonstar Reflex Sympathetic Dystrophy (RSD and CRPS) 20 01-19-2007 11:58 PM


All times are GMT -5. The time now is 12:55 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.