Well,
Just got back from my 2nd appt with my new PM. I liked him much better this time. I did apologize to him for my rudeness last time as I was still recovering from the MRSA and 2 scs surgeries in about 3 wks, nursing home, etc. I was telling him how bad my back was feeling from the surgeries, and he decided that we (I) needed to stop blaming rsd for everything that hurt. He wants a MRI of my back done. He thinks there are now several possible things going wrong. If the mri is clear, then he will go along with rsd. In the meantime, he has taken me off of topamax..no weight loss, and put me on Lyrica. taken me off of percs and put me on Opana 10 mg 2x a day, and then he's going to titrie me up from there, gave me valium for the mri. looking for an open one at the moment. He thinks with the age..surgeries, and all the I may have stonosis sp? and some bulging or scared discs. we will see. I just hope we can drop my pain level down. Thinking about it, I have to agree with him. Everything that hurts can't really be rsd. Just because it happens to be in the same area where I had the back surgery could just be one of those things. >>Well, better get going and find out about an open mri in the area
hugs
mary

Your Dr. is right not to jump on the banwagon that everything is RSD.

I was down with my back all last week. I can't have an MRI due to an implant but my Dr. did say he felt some crunching in my back. As we get older we do deal with these issues such as arthritis and back injuries.

My daughter just had an MRI last week for her back. We were both down at the same time. Her's showed some narrowing and she had inflamation. We both pulled out the heating pads. I used lidoderm patches.

He gave me valium but I didn't take it. She wouldn't take anything either. We both weathered the storm.

I do know though with all you have been through that it's even rougher on you being down with your back.

Feel better soon.

Ada

I hope you start feeling better soon.

I know we can't blame it all on rsd, but it is so easy. One thing that is happening is that I'm losing my balance more and more. It's weird. Not all the time, just some times. It's just like a start to kiel over. especially if I'm bending over doing something. It is kinda funny. Doc is going to start with a steroid shot (under xray) in my back. That should help. I had one 5 years ago, and after the pain and being in bed for 4 days is really did help a lot. He's not keen on the pump just yet. He wants to know what is going on before he goes down that route. He also doesn't want to jump into more surgery. With the way I throw infections we don't want to do to much.

Hugs
Mary

Hi Mary,

I'm SO glad to hear that your doctor is wanting to rule out other possibilities before putting everything down to being "just" RSD!!! It really sounds like your doctor knows what he is talking about and wants the best for you!

I know most of the time unfortunately, all of the symptoms turn out to be the RSD but it's so much better to be safe rather than sorry. My Doctor always seems to put everything down to RSD now and it can get so frustrating at times - especially if I am having new problems that he hasn't paticulary seen before.

I really hope that the tests go well and that you get some answers to your problems. I have balance problems also - they used to be really bad months ago and I was wheelchair bound from them. My Doctor said it was from the RSD and that it is fairly common although not everyone gets that symptom.

Take care of yourself and know that I am thinking about you!!

Alison.

Hang in there Mary. Hopefully you'll get some answers soon that will lead to reduction in your pain.

Take care,

EJ

It's good to hear that your Dr. is doing triggerpoints. They do help and hopefully he will find the answer for you.

Those shots do help. I can remember Bill getting one in his neck and it ended his pain for the rest of the 4 or 5 years he was living. I was the only other pain in his neck. LOL

I have had so many triggerpoint shots if the holes stayed I would be a pin cushion to deal with my RSD, Fibro and other illnesses and they do help.

As far as the falling, are you dizzy before you fall or does it just happen without the dizziness? It could be the meds or maybe even vertigo.

Ada

hi mary
well i know what your docs is saying about blaming stuff on rsd. i almost let me appendix burst because i just summed it up to rsd and the rest of what is wrong with me. so he is right on the aspect. im like you and infections at 17 i had sepsis. so i m very easy to get infections just like this stupid tooth thing. so i know what you mean i get tired of being tired and sick. hang in there girl .. i hope that they can figure out what is goin on

carrie