Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

View Poll Results: Affraid to be around others?
Can it spread 1 16.67%
Can it spread
1 16.67%
Tired all the time? 3 50.00%
Tired all the time?
3 50.00%
Scared? 0 0%
Scared?
0 0%
Depress? 2 33.33%
Depress?
2 33.33%
Voters: 6. You may not vote on this poll

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Old 03-26-2009, 12:44 PM #1
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dreambeliever128 dreambeliever128 is offline
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dreambeliever128 dreambeliever128 is offline
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Default Hi Lisa,

Welcome.

Yes to all 4 of those. I think we deal with depression from RSD. I see it around here. I am doing much better, but I have several friends with RSD around here and we do deal with the same issues.

I had spread, I was tired which I finally ended up with Fibromyalgia and Cronic Fatigue Syndrome. A lot of us end up with Fibro along with the RSD.

Yes you do get scared that it will spread and you really have to watch and not fall or hurt yourself in other areas to cause spread more but it can spread anyway without cause.

I think a lot of us deal with depression with it due to the unbelieveable pain that comes with RSD and the frustration of not getting the right help for it.
It's time consuming and they have to find the right meds to help and the right treatments.

Have you had blocks? A lot of people see good with them.

What I have found with my RSD and others around here, we basically become recluses. Even though I am pretty much in remission, I don't like going out of the house.

Hope you start walking better again soon and become painfree. Keep the faith.

Ada
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Old 03-26-2009, 02:19 PM #2
AintSoBad AintSoBad is offline
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AintSoBad AintSoBad is offline
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Join Date: Mar 2009
Location: Eastern PA.
Posts: 1,143
15 yr Member
Default

Welcome Lisa.
I've had RSD and TOS since 83. In 98, I got a TBI, and some discs. The brain injury really cost me my life, and it's very slow to rebuild.
My story is posted elsewhere, so, I won't rewrite it.

I can tell you this.
RSD (and all chronic pain things) can be looked at like a triangle of care.

First, your Medications. Your Doctor works with you on this.

Second, your Psychology. Your mood, and how you deal with it mentally. If you are fighting depression, you need to see a psychiatrist who deals in pain management.
There is no reason that depression Must be present with Chronic pain. But, since it "Naturally" occurs, some of us need the support of a psych doctor, who understands pain, and can help you "Build a defense Strategy" to the depression and fear, which are in your head. And, after that runs it's course, you may need to visit again, occasionally, to remind you and help with your strategies.

Third, Exercise.
I see so many people who say they're fighting. Well, it IS a fight, but it's what you make of it. If you're not getting out, and walking and if the RSD or pain has stopped an active lifestyle, sitting on a sofa is going to help the disease take you down quicker!
Exercise is a MUST!
I don't want to sound harsh, for instance, here today, it's cold and rainy, I'm NOT going for a walk outside. But, when the sun shines, so too must I. I get outside and walk!
Your heartbeat must be taken higher, and all organ functions need oxygen. That means working the cardio system. If you don't, the disease will strike at you harder.

This becomes a lifelong process, for most of us. The only ones who have been cured of the disease that Im aware of, are those who Exercised through the pain, early on.

You've come to a good place Lisa!
I only arrived this week myself.
Welcome!
Speak your concerns, and ask your questions!

Best Wishes to you!

ASB
Pete
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