Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 03-28-2009, 10:49 AM #11
AintSoBad AintSoBad is offline
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Ada,
Yes, that's me! Call me anything, just not late for dinner, just like dear old Dad!

A word about your memory, we cannot "process" things well while we're in pain. It just don't go together, dr S in Philly told me that, and kept reassuring me of it.

You need to know and this is truly wisdom for those of us with chronic pain....
Know When To Stop.
Shut down the thought process, and listen to music, watch the boob tube, have a conversation with a friend about something different...

I'm involved in HD litigation with my wife, and etc.
She is relentless in wanting to take everything I owned before marrying her, I was fairly well off...
She wants it all.
I should be "Making notes, writing this, that for my attorney"... can't do it.
Sometimes when I can, I do well. But, If i push too hard, forget it all!
It just won't happen.

"His Will Be Done"...

Pete
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Old 03-28-2009, 11:10 AM #12
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how i missed this god only knows. LOL i have chest pain alot. i have tackycardia and i get crushing pain alot. my cardiologst said that she things that is could be from the rsd and that the muscle and tissue are effected but that is hunch as on echo there is no such damage.

cant believe that you got snow.. wait yes i can LOL
its warm and humid today been raining off and on all week and its been killing me to say the least. i think that alot of ppl anytime the barometer changes that it aggervates their RSD and TOS

hugs to you hope DR M helped with the injections


carrie
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hope this finds all in less pain
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rsd DX 99 had since 98 full body and organ involement,fibro ,pelvic pain ,etc,,,,,,




please check out our website to help bring awareness to RSD!


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Old 03-28-2009, 03:45 PM #13
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Default Hi Pete,

You are right about the memory thing being effected by the RSD.

When I first started with my health issues I kept a diary. I wrote down everything from every Dr. I saw to what my PCP did for me and after getting RSD, I just stopped. I cannot concentrate on reading or writing these days.
I'm actually glad for the computer. I have friends and family back home that I use to write to now they just email me or call me. I have one friend in her 70's
that still writes to me and I have so much trouble getting letters off to her. I feel bad because she lives alone.

You do need to write down all you can though for what you are going through. I wish I had kept it up with my diary. We have idiot Drs. that don't do right by us and if we keep diaries we might be able to use the info someday.

I do listen to music. I pull songs up on the computer often and send them to friends. We do a remember when thing with them. I have a kareoke machine here and all kinds of tapes. I watch tv a lot too. I am not near as anxious as I use to be. When this first started, I couldn't sit still at all. Now I can.

Sorry about what you are going through. I never went through divorce but I know it's hard on anyone.

Carrie, the snow is almost gone. I went out in shorts awhile ago. We got about 8 inches. What's nice about around here is that it can snow one day and be gone the next.

My sister told me about the rain down home so I know what you are talking about. I hate rain from growing up in Ky. She's comes out here every summer and got spoiled to the weather.

Carrie, I do hope you are feeling better from those teeth.

Ada

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Old 03-29-2009, 02:46 PM #14
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I had a horrible day yesterday with snowflakes flying in the morning followed by wet cold rain for the rest of the day. Thankfully there is sunshine today! Here is a good article on weather sensitive pain by Dr. Schwartzman.

Quote:
Weather sensitive pain is caused by the Sympathetic Nervous System. This portion of the nervous system monitors for injury of soft tissues in the body. It also regulates those functions that occur automatically, such as heart rate, swelling of the fingers on a hot, humid day, sweating, and constriction of blood vessels.

Due to its ability to perform these functions, if the barometer is about to change, the sympathetic system responds. If a body part is or has been injured, then it will be more sensitive to a rainy or cold front on the way in, and pain may occur. Someone with a knee injury may complain of knee pain as it begins to swell due to a change in the barometer.
http://www.rsds.org/2/library/articl...z_Weather.html

I hope you are all doing better today Ada.

MsL
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Old 03-29-2009, 05:46 PM #15
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Default Hi MsL

I was doing better until today. I went to help a friend out today at her antique shop and I lifted something I shouldn't have. Now I have a headache and the chest pain. Mine is definately the TOS right now.

With the RSD it is the barometer change. I can tell when it's changing. My RSD really acts up then more so then the weather.

The wind is blowing hard here today so that might be making things kick in.

That's a good article. I can remember back when I was growing up, my Grandmother saying her burcitis was acting up or her arthritis and she would say it was due to the weather. I heard that many times from people when I was a kid. It sure hasn't changed.

Ada
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Old 03-29-2009, 06:57 PM #16
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I'm sorry to hear that it is bad today, but happy it is not your heart!

Yes I heard that too from my grandmother. She suffered terribly from phlebitis.

Spring is just around the corner, the robins showed up in my garden last week. I hope you feel better soon!

MsL
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