Thanks so much about the reply on your arms falling asleep at night too!!!! This forum (and computers) are so new to me I don't know if I am doing it all in the right way! I try and sleep on my back only now-so hard! What is the name of the cream, I would like to try it! I can't thank you enough... I have felt so alone lately, even my family doesn't seem to want to understand my condition and I'm a nurse-you think I would know more. I do pediatrics though and never heard of this problem before. Quick question, when I log in to the first nerotalk page how do I find the right search for rsd thread/forums... I tried a search and come up empty. Should I be going to a different link in my favorites? Thanks again!!!!
Jennelle

I wanted to say about your arms falling asleep. Mine did that too. I also have TOS so I chalked it up to that. I spent almost 4 years in PT though and they stretched my fingers and arms and massaged them and I no longer have that problem.

I have the deep nerve pain too. I can't squeeze my body anywhere without making myself hurt. I don't know if we can get rid of that part. I haven't.

I am doing great with my RSD though. I have been off my meds for months so I do know that it can be done. It does take time though to get to a better place with the RSD.

Ada

Thank you for the warm welcome!!!! I have a question for you what is TOS?
Jennelle

Hello deambeliever,

I thinks it's great you are off all your meds. My goal has always been to try and manage my RSD with as little medication as possible. I left my job 3 years ago and so far the only medication I have been able to stop is cymbalta. Where is your RSD and how long has it taken to get where you are now?
Take care
Sherrie