We did hire a lawyer, because what they did was outrageous.

I have permanent stage 3 RSD, it's not ever getting better or going away. So yes, it is hard. The same year they canceled my disability payments was the year I started having problems with my arms/hands also, so it was in fact getting worse.

The first doctor immediately asked (I wasn't even wheeled in fully), "What psychologist are you seeing?" So she didn't know about RSD at all.

The second one was an orthopedist who immediately wanted to examine my legs. How? By putting hard pressure on both upper legs. Hadn't he read the reports from my doctors that I had RSD? Why do they do that? It's worse than torture! No, he didn't know how to handle an RSD patient at all, and things like that shouldn't even be allowed to happen!

I have a thick file over there, filled with doctor's reports that express the finality of the condition. It doesn't seem to be enough.

I agree, the doctor's visits are in function of SS, not in your best interest (as it should be). You need a lawyer.

I still think they need a common denominator for RSD, they shouldn't leave it to the individual competency of each and every doctor that works for social security. It's what makes it a lottery! They need to find knowledgeable doctors, or doctors who at least know what RSD is!