NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)

- - Beds (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/83235-beds.html)

Sleep Number Bed

I have had my king sized sleep number bed for about 4 years and it is the only bed that I will own from now on (unless I don't have a choice in the matter).

Let me mention another potential option for those of you who may be interested in a sleep number bed but have cost constraints. QVC offers a sleep number bed to members that allows you to make installment payments over six months billed directly to your credit card. That plan worked out great for me and I have not regretted the decision for one minute.

I agree with CZ and Mary 100%.

EJ :cool:

Just an FYI for anyone thinking about mattresses. I have a double pillowtop & it is very tall. Ever since my SCS surgery I have had to keep the step my hubby built for me next to the bed. I can no longer get in & out of the bed without it. It requires me to stretch just too much & its uncomfortable. Just something to keep in mind for the future.
Hugs, Denny

I miss my waterbed

Quote:

Originally Posted by quackingmoose (Post 491092)

Question for everyone. My bed is 11 years old, and it is definatley time for a new one. With my boyfriends RSD, is there a type of bed that will make him more comfortable? Sleep number bed, pillow top, any certain kind that will allow him to sleep at least a little better?

When my son came back home he got the bedroom with the waterbed but when he's out-of-town, I'll sneak into his room to sleep on it...bliss...no pressure on my leg. Only problem is getting out of it.

Hello,

I have full body RSD. I have a pillow top Serta and my matress cover feels like a pillow top. I use egyptian cotton sheets when my skin is burning and can't tolerate touch they feel really good to my skin. My bed is very comfortable for me. When I am really really flaired I sleep in the recliner with a small pillow under my low back. I think I sleep better in the recliner because I know I can't toss and turn. I move to the recliner so my tossing and turning in the bed doesn't keep my husband awake.

It sounds like the sleep number warrants some looking into.

Good luck,
Sherrie

All the posts had me sold on looking at a sleep number bed. Unfortuantely the adjustable sleep number bed is not available in my area. I am so bummed. If I am going to spend the money I want the adjustable. I guess I wil have to wait & see if they ever make it available. Thanks for al the info though. Others were listening.
Hugs, Denny

Quote:

Originally Posted by dennyfan (Post 494576)

Denny,

You can go to selectcomfort.com. It is their website, and I know they have a pretty good sale going on right now. In all honestly, I've had everyone tell me that (and that is what I have),the best bed is the sleepnumber 5000. Anything less isn't as comfortable, and anything higher is overkill. I got that info from ohters that have purchased this bed, and the sales people at the store. The only other one I would like to have is the split bed that allows you to sit up in bed. Maybe in the future I'll get that one. For now IMHO there isn't anything better.

Hugs
Mary

ps. if you have a good foundation, don't buy theirs. Use the one you have if it is in the same size. It is much cheaper without the foundation,and the bed is so light that you don't need anything special.

I would like to hear more thoughts on this issue since I have been sleeping in a recliner since Oct. 2008. I have osteoarthritis in my hips, pelvic bone, and spine. I will take any and all opinions.
tjbird

An interesting question - thank you for sharing all of your input!

I have a double bed. I haven't had a single bed since I was about 8 years old (now 14) as I just didn't find them comfortable and didn't think that there was enough room in them.

Since I developed RSD, my mum has always slept in my bed with me. I fall quite a lot sometimes so my mum prefers to be with me to watch me if I go to the toilet in the middle of the night etc. Also, when I was first diagnosed with RSD, I couldn't walk at all so had to rely on my mum to take me everywhere. Some people think i'm strange because my mum sleeps in the same room as me even though i'm 14 but I tend to rely on her a lot when i'm not feeling well.

My matress is super soft. It is a memory foam matress. My mum can get to sleep straight away in it nearly but it takes hours for me to fall asleep! I don't sleep that much either and always fidget as I cant get comfortable. I have to sleep with my leg out of the side of the bed and now that I have RSD in both arms, it is even harder as I can't lay on my sides really now for pain.

If your boyfriend has RSD in his leg, it might be worth getting one of those 'cages' for your leg - especially if his leg is hypersensitive. They fit under the duvet cover and you put your leg under it and it stops the blankets from touching you. I had one and it was useful but the hypersensitivity started spreading so after so long, it didn't help really. You can get them off the internet and they are pretty cheap.

Some people I have spoken to have said that Orthopaedic beds are good so that might be something to look into also.

Take care.

Dear Ali about your Mom

Quote:

Originally Posted by ali12 (Post 494714)

An interesting question - thank you for sharing all of your input!

I have a double bed. I haven't had a single bed since I was about 8 years old (now 14) as I just didn't find them comfortable and didn't think that there was enough room in them.

Since I developed RSD, my mum has always slept in my bed with me. I fall quite a lot sometimes so my mum prefers to be with me to watch me if I go to the toilet in the middle of the night etc. Also, when I was first diagnosed with RSD, I couldn't walk at all so had to rely on my mum to take me everywhere. Some people think I'm strange because my mum sleeps in the same room as me even though I'm 14 but I tend to rely on her a lot when I'm not feeling well.

My mattress is super soft. It is a memory foam mattress. My mum can get to sleep straight away in it nearly but it takes hours for me to fall asleep! I don't sleep that much either and always fidget as I cant get comfortable. I have to sleep with my leg out of the side of the bed and now that I have RSD in both arms, it is even harder as I can't lay on my sides really now for pain.

If your boyfriend has RSD in his leg, it might be worth getting one of those 'cages' for your leg - especially if his leg is hypersensitive. They fit under the duvet cover and you put your leg under it and it stops the blankets from touching you. I had one and it was useful but the hypersensitivity started spreading so after so long, it didn't help really. You can get them off the INTERNET and they are pretty cheap.

Some people I have spoken to have said that Orthopedic beds are good so that might be something to look into also.

Take care.

Dear Ali, I don't think its weird your Mom sleeps with you, God Bless you. What ever can bring the two of you some peace. I know what you mean about getting up to go to the bathroom in the middle of the night and falling. I have fallen three times and split my head on the marble floor. So your caution is for real. Especially since you have such terrible tremors and spams in your leg as I recall your video. Its so wonderful your Mum is so caring.
Take care Ali and thanks for sharing. Sincerely, CZ

I also get about 3 - 4 hours of sleep per night, mostly because I can't remain comfortable. I generally fall asleep quickly because I am exhausted, and then wake up 2 1/2 hours later to toss and turn the rest of the night.

I travel a bit more than many. I have had the opportunity to try a sleep-number bed, temperpedic (sp?) and others. Last week I was at a luxury resort for a conference and they had an extra-thick pillow top mattress. How soft it was! It didn't help. :mad:

Anyway, for those who think a "memory foam" type of mattress would be good, I did buy a mattress topper for my mother that was made of this material. It was from Wal-Mart and a lot more affordable than an entire Temperpedic set. I don't recall, but I believe it was under $200.

Sweet dreams, everyone. :)

Mike