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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#1 | |||
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Junior Member
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Question for everyone. My bed is 11 years old, and it is definatley time for a new one. With my boyfriends RSD, is there a type of bed that will make him more comfortable? Sleep number bed, pillow top, any certain kind that will allow him to sleep at least a little better?
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#2 | |||
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Magnate
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This question will interest me. I have been sleeping on my boys bed when they aren't here. I cannot get comfortable at all on mine. The kids bought me a very nice thick mattress pad for Christmas and it still didn't help. I am ready for a new mattress. Ada |
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#3 | |||
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Member
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I am also interested in the answer to this question. I barely get 3-4 hrs. sleep,and not always during the same time..so, I get up..never feeling rested. I hope someone has the answer
![]() GREAT QUESTION ![]() Dew
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. A Positive Attitude Will Assist Me Toward An Active Life, Once Again . WC Injury 03/24/07;Two Right Knee Surgeries on 5/22/07 and 01/16/08. Surgeons and Physical Therapists ignored my concerns of burning pain, swelling, and no improvement and getting worse. Diagnosed RSD/CRPS I/Sympathetically Mediated Pain Syndrome/Chronic Pain on 06/2008 by family doc;on 08/2008 and 12/2008 diagnosis confirmed by two WC PM Doctors: Both legs;hips; hands; and spine effected by this culprit. SSDI granted 01/2009. |
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#4 | |||
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Member
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I hear a lot of talk about mattresses by Tempur.
I have been sleeping in a hospital bed for years (regular latex mattress). All other beds are far too low for me to get into or out of; this one can be set to a greater height. It's set at the height between a normal seat and a barstool. It's still difficult to get in and out of bed, but at least this bed helps a bit. I can automatically adjust the front and back of the bed (very nice when feet are swollen). I too barely sleep. I wake up every three hours or so if I sleep and I rarely feel rested. That's why I fall asleep throughout the morning (until noon and beyond) and even then I automatically nap (fall asleep) every few hours in the afternoon. It never stops. There are days where I go to bed between 6 and 8 PM, and I still manage to sleep until 2 the next day (with lots of awake time, intermissions). If I don't take my muscle relaxants before bed, I don't sleep at all, then I only manage to sleep about once every 2 days and my legs will be as stiff as hell! Last edited by CRPSbe; 04-04-2009 at 01:55 PM. |
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#5 | |||
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Member
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I have bought both a tempurpedic (foam) mattress and a sleep number bed. The foam mattress was ok..but we only kept it 2 years as it does tend after a while to not bounce back like it is suppose to
![]() ![]() ![]() Hugs Mary ![]()
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There is no future, there is no past, we must make each moment last |
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"Thanks for this!" says: | Grammadur (04-05-2009) |
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#6 | ||
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Member
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Quote:
We too tried the tempurpedic mattress, didnt work. Then we invested in the sleep number system. It is an investment, but one of the best we ever made. We have the king- since it has dual controls- I can have a very soft bed, as low as 15 if i am in a flare and my husband can keep his side firm. then this christmas my sisters gave us the dual control electric blanket. I have cold RSD- so know I can have my side on high, day or night and my husband can have his side off or on a more normal setting. Later we added the adjustable part of the bed. this is because I can not llift my own head. RSD in spine and my neck is very weak. so the abilitiy to raise the head of the bed has been a real benifit for me. In both getting in and out of bed and resting. Please remember to get a script for the bed from your Pain Management Doctor or Primary- some people will be able to have their insurance company pay.If not if you have the script, you are able to write all expenses for the bed off of your taxes. Also there is a medical discount from sleep number if you have a script- and you do not pay the tax which is significant- Ithink we got $500.00 off. Good luck to everyone- its a huge investment but so worth it. As Mary said, all of the products are excellent. Hope this helps you. CZ Last edited by CZZ74; 04-05-2009 at 05:52 AM. Reason: spelling |
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"Thanks for this!" says: | Grammadur (04-05-2009) |
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#7 | |||
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Junior Member
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Myself, I have had to move to the recliner. I do remember someone else talking about bed and they said the memory foam beds or even just a memory foam mattress will make all the difference in the world. I am very poor and cannot afford to make the change however as soon as I can save up
![]() ![]() ![]() ![]() Hope this helps tjbird |
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#8 | |||
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Junior Member
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After reading all the posts that you have gotten sleep and RSD are a major issue for us all. Everytime I go to have a procedure or test, I always ask them if they have a spare bed I could have
![]() ![]() ![]() tjbird |
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#9 | ||
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Junior Member
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Quote:
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#10 | ||
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Member
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Hello,
I have full body RSD. I have a pillow top Serta and my matress cover feels like a pillow top. I use egyptian cotton sheets when my skin is burning and can't tolerate touch they feel really good to my skin. My bed is very comfortable for me. When I am really really flaired I sleep in the recliner with a small pillow under my low back. I think I sleep better in the recliner because I know I can't toss and turn. I move to the recliner so my tossing and turning in the bed doesn't keep my husband awake. It sounds like the sleep number warrants some looking into. Good luck, Sherrie |
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