Hi Tjbird,

I agree with the ladies who responded before me.
RSD is different for all of us. It is without a doubt the most painful thing I have every dealt with.
I have full body from the top of my head to the tip of my toes it also effects my lungs and heart. I have learned to take life one hour to the next. I listen to my body when it says rest I rest. I decide how much I want to do something and will it be worth a possible flair up of my pain.
I had a SCS for 2 1/2 years I had many programers during that time and they couldn't get it programmed. The leads were placed to cover my arms, legs and low back. I started having a lot of additional low back pain and it was agreeded upon by all my doctors that it should come out. The wires leading from the gernator to the spine where applying too much presure on the spine. I had it removed and my low back pain is much better. I see a chiropractor 3 times a week and I have for the last 8 years. He DX my RSD when it started in my right arm.
Good luck and I hope you get relief soon!!!!!
Sherrie

What is SCS? Is it a spinal cord stimulator? That is what my drs. want to do....is it worth it?
Jennelle

Hello Jennelle,

Yes, it is a spinal cord stimulator. It didn't work for me but that doesn't mean it won't work for you. I have full body RSD and they couldn't get it programmed for full body stimulation. The leads where from C3 in my neck to the lumbar area of my spine. When it was on and I turned my head it would turn up the stimulation and shock me. Mine was very sensative to posture. When I sat down it would change the stimulation and it would go so low it wasn't helping. They are expensive my insurance was billed 52,000.00 and it took a year for them to settle on 32,000.00. I had it for 2 1/2 years and had it removed for less than 5,000.00.
Best of luck with your journey for relief!!!
Take care,
Sherrie