I am going to add my two cents here as well. Do your research on the SCS, very well. I will have full body CRPS this July for 20 years. The very best piece of advise, my doctor gave me was "keep moving, no matter what". No marathons, pace yourself and water therapy as suggest earlier, is great.
SBOWLING and Loretta, I believe, hit the mark with their advice. I wish you all the best Jenelle!
Loretta, great to see you back. Di

I'm glade to get some feedback on the full body RSD as I don't believe my Pain Dr believe this. I went yesterday and I had to discribe my pain that the stimulator does not cover, well I have been telling them for months my pain is spreadding and I either have RSD in my spine (since I have plates for the stimulator) or as my primary Dr. said with everything that I have going on, it sounds to him like fibromyalgia. Now here isa the part I need help with trying to judge reality from how I felt about this statement "you know we don't treat fibermyalgia with opiods we do however treat osteoarthritis with them" Then they said that the stimulater is for the RSD, which I feel since my last adjustment, it is working very well. Now my thought pattern was offended with the sugestion that I want more opiods, do you think I am takening this out of context? I had already done my reasearch on the fibromyalgia and what types of medications are used with FMS and I am already on two of them. I would love to get of my long lasting medicine but if I am in this much pain, with this dose of meds my fear is I will be in double pain.
Anyway I trust your input on whether I should feel insulted to the point that I want more opiods.
Need to let it go. Please Help!
tjbird

Given the current studies on Fibro....
Fibro is a central pain disorder. It occurs in the brain.
The new thoughts are that pain signals are amplified genetically in fibro patients. Like a radio turned up in volume that cannot be tuned down.

Fibro may be triggered by a peripheral event. This can be an injury, vaccine, arthritis etc.

New studies have found 8 times the incidence of fibro in relatives, suggesting a genetic weakness. Fibro does not cause swelling, discoloration, etc that is found in RSD patients.

But RSD may be a trigger for fibro in certain people.
At this time RSD is considered a neuropathic condition...a defect in the nervous system that affects the circulation to the affected area/site. So one person may have both. But some people may only have the RSD.

I am planning on attending a huge medical conference on chronic pain in late May. It is going to have a Fibro section. I went 2 yrs ago and it was amazingly informative!

mrsD,
That sounds facinating and I will be looking forward to you filling us in. You all are a wealth of information.
Thank You!
tjbird