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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#1 | ||
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Senior Member
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I would caution you to be REALLY careful in selecting and keeping your RSD docs. I have written here (often by now) of how I was referred in June of 2008 by my ortho in RI to a PM doc who had a degree from Harvard med school and was voted best PM doc in the state by RI magazine - who referred me to a CHIROPRACTOR for care early in my diagnosis, instead of ordering blocks, which are typically considered standard early on. By the time I got to a good teaching hospital in Boston my RSD had spread full body.
Due your research and be very careful who you trust. Try to get to a good research facility. Good luck. Sandy |
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"Thanks for this!" says: | Jennelle (04-09-2009) |
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#2 | ||
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Member
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Quote:
Good point Sandy! We have University of Washington up here that I have been trying to get a hold of to see if anyone is doing studies or if they have specialists. My OT found a doctor but unfortunately my case manager said they didn't call her back. I think part of my problem finding good doctors is because I was hurt at work and no one wants to touch a workers comp case. As an RN, I have worked with tons of drs, and after awhile you know the good from the bad. It is just hard knowing that until you see them and picking from a list hasn't helped. I did find some sites that let you see if they had complaints against them and such but you had to pay for the info.....seems wrong to me. Hope this finds you Well! Jennelle |
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Magnate
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I live in Colorado and I found it litterly impossible to find a good Dr. for RSD. I went to the U. of C in Denver and they used me for a guinna pig. Saw several Drs. there and none of them really knew anything about RSD. Also saw one in the Springs and he was a joke too. Saw another on in our area and he turned out to be a pill pusher and knife happy. He gets a lot of patients from around here and he sure messes them up.
My PCP does all of my medical care. I go to other Specialist for other things and I end up asking him to help me and he gets out his books and on the computer. I think it's like the others said, make sure you can trust these Drs. and if they offer you a procedure that is too invasive ask if you can go home and think about it and then study up on it. Keep looking until you find one that you feel comfortable with. Ada |
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"Thanks for this!" says: | Jennelle (04-09-2009) |
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#4 | |||
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Co-Administrator
Community Support Team
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I just remembered we have this in the TOS forum stickys.
I you have Drs names you can look them up. Or do searches by location, etc. http://www.ratemds.com/social/?q=node/11 [RateMDs.com allows patients to rate and read about their doctors and dentists. We average over 800 new ratings per DAY, so please keep checking back.] this is a basic pain management search results for WA- http://www.ratemds.com/social/?q=nod...ip=&radius=120
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Search the NeuroTalk forums - . |
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"Thanks for this!" says: |
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#5 | ||
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Yappiest Elder Member
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Also, do a check of your Dr or one you are thinking about seeing at the State Medical Board. Be sure to ask if the Dr has practised in other states.
Here is a link that gives a directory to every states board. http://www.fsmb.org/directory_smb.html This link has more for Texas, but also national links..such as HIPPA laws. http://www.tmb.state.tx.us/links/links.php
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. Last edited by Curious; 04-09-2009 at 01:59 PM. |
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#6 | ||
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You all rock!!! thanks again!!!
Jennelle |
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"Thanks for this!" says: | Curious (04-09-2009) |
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