Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 04-08-2009, 07:08 PM #1
Grammadur Grammadur is offline
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Originally Posted by Jennelle View Post
My case manager wants me to enter into a pain management program that is an hour away from my home (a drive i can't do myself). It would include a physiatrist, psychologist, anathesologist, ot, pt, and vocational person.... anyone done one of these before? Is it worth leaving my family and having to live there for 4 weeks? I want to cry thinking about leaving home and having to be poked at even more than before.... plus I just talked to the program administrator and he was flabbergasted that my doctor has me on morphine for the pain....should I not be? What do you all take???? Please contact me personally or add on if you have any answers!
Jennelle
Hi Jannelle,

I'm new to rsd so i've never heard of a pain management program where you would stay for 4 weeks. It sounds interesting and might be worth a try - easy for me to say. I take Lyrica 300 mg a day and Flexeril or Darvocet for break through pain. If you decide to do this please let us know how it works. Good luck with your decision.

Sally
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Jennelle (04-09-2009)
Old 04-09-2009, 12:23 PM #2
Jennelle Jennelle is offline
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Originally Posted by Grammadur View Post
Hi Jannelle,

I'm new to rsd so i've never heard of a pain management program where you would stay for 4 weeks. It sounds interesting and might be worth a try - easy for me to say. I take Lyrica 300 mg a day and Flexeril or Darvocet for break through pain. If you decide to do this please let us know how it works. Good luck with your decision.

Sally
I'm glad the Lyrica works for you.... I couldn't get past the first week---I was running into walls!
Jennelle
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Old 04-09-2009, 12:35 PM #3
Jennelle Jennelle is offline
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Thanks to all of you for your answers and support... I was injured at work-I am a Registered Nurse that works at Mary Bridge Children's Hospital, and I hurt my self sliding a patient up in bed (250lb 10 year old). My rsd is in my left side from shoulder to hand now spreading to the right side. I think the program tries to get you off all meds, and that they work with you everyday I would live in an apartment there. Part of the big problem is that I wear the pants in the family- and have 3 soon to be step children (17,14,10yrs). My mother is also in poor health and she may have cancer and a heart condition that is being looked into so being a nurse I go to all her appointments with her....I don't want to leave her. To top it off (stop me if I sound too pitiful)in the last year I have dealt with my aunt dying, uncle committing suicide, my finance's grandma died, month later his dad and now on January 2nd his step Dad died. I have been trying to be the emotional support for everyone on top of everything else. I think that is part of the reason my case manager wants me in this program so that I will "focus on myself." I am just not that kind of person. Yes I do my home programs, fit in relaxation techniques, and still try do do everything else I used to. I tried to go back to light duty 3 times...I want to work I just can't make my body understand that. Thank you all again so very much!!!!! Finding this site has kept me sane!
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Old 04-10-2009, 01:08 AM #4
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Dew58 Dew58 is offline
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Heart Here for you..

It will be ok; deep breath,now...Some rest will make things appear clearer to you. Stress brings more pain..I am here for you.

Dew
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A Positive Attitude Will Assist Me Toward An Active Life, Once Again
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WC Injury 03/24/07;Two Right Knee Surgeries on 5/22/07 and 01/16/08. Surgeons and Physical Therapists ignored my concerns of burning pain, swelling, and no improvement and getting worse. Diagnosed RSD/CRPS I/Sympathetically Mediated Pain Syndrome/Chronic Pain on 06/2008 by family doc;on 08/2008 and 12/2008 diagnosis confirmed by two WC PM Doctors: Both legs;hips; hands; and spine effected by this culprit. SSDI granted 01/2009.
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Jennelle (04-13-2009)
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