Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 04-09-2009, 12:19 PM #1
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Default Happy Birthday,



Happy Birthday Lordwood. How old are you today, or should I say how young. I know you probably feel way older then you are due to the pain and the other problems.

I hope you get that treatment. I know you have been through way too much to be so young.

Sorry the Methadone didn't work for you. I loved it. It helped me a lot and I still keep it around for bad days.

Good luck on that treatment.

Ada
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Old 04-09-2009, 12:28 PM #2
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Quote:
Originally Posted by dreambeliever128 View Post

Happy Birthday Lordwood. How old are you today, or should I say how young. I know you probably feel way older then you are due to the pain and the other problems.

I hope you get that treatment. I know you have been through way too much to be so young.

Sorry the Methadone didn't work for you. I loved it. It helped me a lot and I still keep it around for bad days.

Good luck on that treatment.

Ada
Thank you for the happy birthday. While i am still young to you my body feels that of an elderly person. Age is more of a dread to me as because i am young i will be enduring this pain for many decades to come.
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Old 04-09-2009, 12:47 PM #3
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Default Hi,

I am very sorry for what you are going through.

I know being younger makes a person have to go through this so much longer.
It will get better for you, it's just going to take some time and hopefully in a few years you will be able to look back and see how far you came. Give it that time.

I will be 58 this year. I got sick at 37 and my Dr. use to tell me that I didn't have to worry about getting older, I've already been there.

We just have to keep hanging on until we find the right treatments for what we are dealing with. With RSD it is harder but I know there is the right Dr. out there and the right treatment for you.

Ada
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Old 04-09-2009, 01:15 PM #4
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Some people when the pain level gets very high, it makes them physically sick. It's not uncommon and it surprises me the docs would be blaming in on your meds! I mean, meds can cause you to get sick but it's standard body biology that with some a way high pain level means sick. geez.....do these people actually go to medical school? LOL

I'm sorry to hear you're dealing with Crohns along with everything else. I can't really offer much more because I don't have Crohns nor does a high pain level make me ill. Life just seems determined to keep taking potshots at you. You have my highest regard and respect for the way you deal with it all. I know many people your age wouldn't deal with all of this with nearly the strength and fortitude you do.

Hugs,

Karen
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Old 04-09-2009, 02:00 PM #5
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Hi LordWood
I left you a reply re Crohn's on your thread on our autoimmune forum as my son also has crohn's
http://neurotalk.psychcentral.com/thread83800.html

I hope this can be of help and encouragement to you
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Old 04-09-2009, 04:00 PM #6
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Lightbulb

A gentle reminder...

When a person has an inflammatory bowel issue, many nutrients do NOT get absorbed normally.

Malabsorption may lead to more symptoms from the loss of nutrients.

One that stands out for me, considering the new information out now about pain...is Vit D. You can be tested for this, and many are taking advantage of that.

http://psychcentral.com/news/2009/03...in-d/4903.html

http://newsblog.mayoclinic.org/2009/...c-pain-relief/

Another nutrient that helps with pain is magnesium.

Also, malabsorption has affected B12 levels in many patients.
People with Celiac are often very low in B12. Low B12 damages nerves.

So, please consider that you may find some relief/improvement if you are low in some nutrients because of your Crohn's.
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Old 04-09-2009, 04:31 PM #7
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Lightbulb

that is interesting too for me mrsD as my son takes extra magnesium and vitamin D and B12 related to his TS/OCD so those are likely working along with the other supps i mentioned on the autoimmune forum thread to help his Crohn's symptoms as well
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