Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 04-11-2009, 12:57 PM #1
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Heart Thanks :)

My hubby says he thinks it is about a 2 day drive, maybe a little less. We own a luxury car, Buick Park Ave, and it does have a smooth ride. The most I have had to travel since I have had RSD is 210 miles(round trip), to see PM.

I will keep all of your suggestions in mind, and will be able to contact everyone while I am staying w/my sister and her family, while in Arizona. I will be seeing PM and psychologist just before we are to journey west( I am in OK).

Thank you for your prayers and feedback.


Dew
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A Positive Attitude Will Assist Me Toward An Active Life, Once Again
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WC Injury 03/24/07;Two Right Knee Surgeries on 5/22/07 and 01/16/08. Surgeons and Physical Therapists ignored my concerns of burning pain, swelling, and no improvement and getting worse. Diagnosed RSD/CRPS I/Sympathetically Mediated Pain Syndrome/Chronic Pain on 06/2008 by family doc;on 08/2008 and 12/2008 diagnosis confirmed by two WC PM Doctors: Both legs;hips; hands; and spine effected by this culprit. SSDI granted 01/2009.
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Old 04-11-2009, 01:45 PM #2
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Just wanted to say that I hope she'll beat this! Your support will be a blessing to her, I know that much. Family is important in times like these. RSD is not easy to deal with and you are so willing to make the sacrifice, to go through so much pain to help her out. Wishing you lots of strength!!!

Thinking of you both!
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All the best, Marleen
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Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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Old 04-11-2009, 10:31 PM #3
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Dew, My prayers are with you & your sister. I am sure a positive attitude helps with this. I belive that to be true. You have gotten alot of great advice. I have travelled alone doing all the driving myself since getting RSD. ANd with family. I did 1200 miles in 3 days. It was very very hard. I also have a luxury car. I have a 1995 Cadillac. Rides like a dream. Still I needed the extra pilows like were suggested. I wear loose clothes. And I get the heck out of that car as often as I can or feel I need to,. Period. Otherwise its way worse. I have made the same trip for years & used to just shoot on through like a bolt of lightneing. Not anymore. Take your time & take care of yourself & it will pay for itself when you get there. Have a very safe trip.
Hugs, Denny
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Old 04-13-2009, 10:13 AM #4
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I would fly. Southwest has some amazing deals right now.

I have severe difficulty just going the 60 or so miles to Boston from Providence every 3 - 4 weeks for my blocks. The last time my husband drove me up there I had an excrutiating headache and it was truly tortuous for both of us (it's a very good thing you aren't allowed to eat or drink anything 6 hours before the procedure, because I likely would have been sick in the car!). It doesn't help that the roads in Mass are really bumpy and full of potholes.

If you decide to drive, it might be a good idea to find out about the condition of the roads, the availability of rest stops, etc before you leave so that you can plan your trip accordingly.

I'm so very, very sorry about your sister.

Please take care of yourself, Sandy
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Old 04-14-2009, 01:23 AM #5
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i suround myself with big comfy/soft pillows, a small throw blanket, pain meds, recline the seat some...

although i think this is kinda weird, but it hurts a lot less for me when i'm actually driving then if i'm just sitting back.
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Old 04-14-2009, 01:54 AM #6
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Heart Thanks You All :)

I do appreciate your sharing tips for traveling with RSD.

I don't want to burden my sister and her family with my RSD issues, so I will follow the tips that yall have shared with me.

My sister, Wanda, is 52. At 42, she had a little girl (change of life baby). Reva just turned 11 years old, and she loves art. I am an artist, and my sister ask me to teach Reva some art techniques(quilling;paper sculpture). I have a box of supplies that have several beginner's kits and quilling materials/tools, that I made just for Reva.

This will keep Reva busy and will also make it easier for my sister to get some rest. My sister also has an 18 yr old son, and a 26 yr old son. My sister and her hubby will celebrate 30 years of marriage this June. Wanda will turn 53 in May, and we plan to have a birthday party while my hubby and I are visiting.

We are keeping a positive attitude concerning the pancreatic cancer diagnosis. Hope is what we all cling to,right? I do, anyway.


Dew
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A Positive Attitude Will Assist Me Toward An Active Life, Once Again
.

WC Injury 03/24/07;Two Right Knee Surgeries on 5/22/07 and 01/16/08. Surgeons and Physical Therapists ignored my concerns of burning pain, swelling, and no improvement and getting worse. Diagnosed RSD/CRPS I/Sympathetically Mediated Pain Syndrome/Chronic Pain on 06/2008 by family doc;on 08/2008 and 12/2008 diagnosis confirmed by two WC PM Doctors: Both legs;hips; hands; and spine effected by this culprit. SSDI granted 01/2009.
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Old 04-14-2009, 12:13 PM #7
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Dew,

Keep us posted when you get there and how things are with your sister!

Wishing you lots of strength, and courage!
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All the best, Marleen
=====================
Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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