Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 04-14-2009, 07:19 AM #1
daniella daniella is offline
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daniella daniella is offline
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I am so sorry and you are in my thoughts always. I saw this happened on facebook and want you to know I am here for you. Even if you just need to vent that can help with some of the feelings and to not be alone. You are such a strong young lady and I know will beat this.
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ali12 (04-15-2009)
Old 04-14-2009, 12:30 PM #2
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CRPSbe CRPSbe is offline
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Ali,

Take care of that arm and wrist. I'd not be happy about a cast myself. But what can you do, right, if that's what they recommend. If I were you, I'd check more than once with my RSD doctors about the cast and about the best possible way to go about this.

I had RSD in both legs for about a year and a half, undiagnosed at that time, and because of my knee problems, they put one of the legs (they'd do the other one later) in a full cast for weeks. My feet were blue, both feet, but that was ignored. I had discolorations in both legs that came and went, often starting from the knee down and going up. Also ignored. Then almost immediately afterwards the first knee was operated on. I wrote it in my admission forms that my feet were blue (the doctor had ignored it too much IMMHO). Later they couldn't find the forms or my file! The surgery aggravated the RSD (the entire leg of the operated knee was black in color after surgery, the other had regular RSD discolorations). The doctor didn't show up after surgery like he was supposed to and the nurses commanded me to bedrest because of the color of my legs. Afterwards, both legs got worse and there was even nerve damage in the operated leg! It took another year for doctors to realize that I had RSD. That's why there's not one orthopedist around, right now, who will surgically touch the other knee.

You need to be careful with surgery and casts and immobilization, so please get some good RSD advice from RSD knowledgeable doctors before you proceed and let them put on a cast!
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All the best, Marleen
=====================
Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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