Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 04-16-2009, 10:41 AM #11
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I was also told this in the past. What I have found since I have seen a few pain docs who deal with rsd is they all have their approach. Some believe in more meds and some just believe in certain procedures. A lot will only do what they do for treatment and not change that view for anything or work with a person. I think with this everyone reacts different. I have not had the best luck with meds though am trying some new ones now. I do get to the point though in pain that even if a pain med took a little edge off it gets me through so to speak cause sometimes the pain becomes too much. What did your doctor suggest then for your next step in treatment?
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Old 04-16-2009, 12:02 PM #12
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Then next step is to try cymbalta and he upped my morphine to 3x a day. He also told me that eventually i will have to stop taking it and that I won't like that. He is all about the pain clinic they want me in now...I just don't know if they will do anything different then I have had before. You know my reasons for not wanting to go....I just can't right now. I took the cymbalta and I feel so sleepy and foggy...the morphine doesn't even do that to me. I have tried Lyrica, amitriptiline, dephedapine, all bad side effects. He seems to think the best thing would be one of the antidepressants that are also used for nerve pain.
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Old 04-16-2009, 07:42 PM #13
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Default Hi Jenelle,

I saw a PM Dr. years ago that wanted me to go to a pain program. It was for a month and I would have had to drive 35 miles each way plus be their for 8 hours each day. There was no way I could have done it then and I couldn't do it today. It turns out the PM Dr. owned the Pain treatment clinic.

I am sorry to hear they are trying to make you go through that.

I think there is a law that you have to be treated for cronic pain in a way that will help get a person comfortable with pain.

I also got an email last week that there is another law that is up at Washington now being worked on for cronic pain.

We have to be our own advocate with this and getting the help we need. I was watching The Doctors today and they said you have to act like a CEO of your medical care.

I do hope you get the help you need to get better.

Ada
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Old 04-17-2009, 10:57 AM #14
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I too just went back on Cymbalta. I tried many other meds for this with no relief and was on Cymbalta for 6 months but too low of a dose and now we are working up to 120 along with a few other new meds to try. It does not make me sleepy but as I told you nothing does but I know when I was increasing before and now I feel icky like nausea but it did get better once my body adjusted. Have you tried taking it at night with dinner? I am not sure what dose you are on but when I started they told me to take it then.
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Old 04-17-2009, 11:02 AM #15
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The most important thing in RSD is that you keep mobile to some extent. Decreasing the pain to such an extent that you are able to do that and keep some of that mobility is key IMMHO. At least you are not making it worse by just laying there in pain that's too high to move a muscle.
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All the best, Marleen
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Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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Old 04-17-2009, 04:48 PM #16
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Yep! They Re going to start counting my boyfriends pills, so when we filled the prescription today, I had the pharmacist count the pills in front of us to make sure we he started with the correct amount.

probably a dumb question..but what is bio feedback?
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