Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

Reply
 
Thread Tools Display Modes
Old 04-14-2009, 06:02 PM #1
AintSoBad AintSoBad is offline
In Remembrance
 
Join Date: Mar 2009
Location: Eastern PA.
Posts: 1,143
15 yr Member
AintSoBad AintSoBad is offline
In Remembrance
 
Join Date: Mar 2009
Location: Eastern PA.
Posts: 1,143
15 yr Member
Default

I hope that I don't someday regret writing this.

But, here's my guess.
And, It's ONLY for those of you who have a solid relationship with your neuro, or pain management psychiatrist. (Whomever is doing your prescribing, which, should be 1 person) naturally.

For instance,
Mr Bluffit has RSD / TOS and some discs, that all act up you know, some days are worse than others.
The doctor has him on a "cocktail", and one opiod, let's say Methadone, is used for pain relief.
Mr Bluffit is given 30 mg. / day. 10 mg each.
One morning, One afternoon, One evening/bedtime. "As required".

On a good day, what Mr Bluffit must do, is to take half a pill when possible. Or, skip one.
This allows him to build up a very small "stock" for "Breakthrough" pain.

I don't know the name for this, but, it has been told to me, by my own doctor's office, that I'm responsible for "saving for that rainy day", as they cannot prescribe for it.

Couldn't make more sense to me!

Some days I may be just "lazing" around. Naturally, I take less of the pain med!
We're Not machines, or cars, that must have our "tanks filled".
We can cut back when we're able, and have that half a pill or so, to use on a bad day, after we exerted ourselves, or the weather is bad, or, on and on.

I hope this might help.

pete
asb
AintSoBad is offline   Reply With QuoteReply With Quote
Old 04-14-2009, 10:47 PM #2
Jennelle Jennelle is offline
Member
 
Join Date: Mar 2009
Location: Washington
Posts: 100
15 yr Member
Jennelle Jennelle is offline
Member
 
Join Date: Mar 2009
Location: Washington
Posts: 100
15 yr Member
Heart

Quote:
Originally Posted by AintSoBad View Post
I hope that I don't someday regret writing this.

But, here's my guess.
And, It's ONLY for those of you who have a solid relationship with your neuro, or pain management psychiatrist. (Whomever is doing your prescribing, which, should be 1 person) naturally.

For instance,
Mr Bluffit has RSD / TOS and some discs, that all act up you know, some days are worse than others.
The doctor has him on a "cocktail", and one opiod, let's say Methadone, is used for pain relief.
Mr Bluffit is given 30 mg. / day. 10 mg each.
One morning, One afternoon, One evening/bedtime. "As required".

On a good day, what Mr Bluffit must do, is to take half a pill when possible. Or, skip one.
This allows him to build up a very small "stock" for "Breakthrough" pain.

I don't know the name for this, but, it has been told to me, by my own doctor's office, that I'm responsible for "saving for that rainy day", as they cannot prescribe for it.

Couldn't make more sense to me!

Some days I may be just "lazing" around. Naturally, I take less of the pain med!
We're Not machines, or cars, that must have our "tanks filled".
We can cut back when we're able, and have that half a pill or so, to use on a bad day, after we exerted ourselves, or the weather is bad, or, on and on.

I hope this might help.

pete
asb
That is a good idea but my drs count my meds and since it is a work claim I have to have a contract and they do pee tests to see what my levels are and know if I took more one day or not. I actually tried that with the methadone and had one left and took it yesterday...now I am freaked that they will know and I will be in big trouble! What do I do about that? I don't even know how long it takes for any of the meds to leave my system and he said he can call me for "random" drug screening -granted I NEVER have given them any reason to do this it is only because it is a workers comp claim that they do this. It just sucks!
Thank you so much for your response! If you have any idea about the pee length of time let me know guys. I would love to be able to have one for a "rainy day". Yesterday was especially bad.
Jennelle
Jennelle is offline   Reply With QuoteReply With Quote
Old 04-14-2009, 11:21 PM #3
AintSoBad AintSoBad is offline
In Remembrance
 
Join Date: Mar 2009
Location: Eastern PA.
Posts: 1,143
15 yr Member
AintSoBad AintSoBad is offline
In Remembrance
 
Join Date: Mar 2009
Location: Eastern PA.
Posts: 1,143
15 yr Member
Default

Jenelle,
Best thing is Honesty.
Be straight up with your doctor.
You might print out one or two notes from this thread.
If you doctor is any good, he KNOWS that RSD, is worse some days than others.
So, simply ask him/her, would they like to prescribe an extra pill or more for "breakthrough" pain during the month, or How do They Suggest Working It?
The Question, I think is best.
Just because my doc did one thing, doesn't make all the others comfortable with that.
And, I personally don't see any reason to use any different medication for breakthrough pain, if you're using a usual enough level of the first. (Was I clear on that?)
In other words, all you might need, is another pill of your regular pain control med.
PM me, if you feel you must.

Then to do that, say you're prescribed 90/month.
So, You get Breakthrough pain once/twice a week.
Should he prescribe an extra one/two per week? (That's the Question!)

Or, should you build up, a bit, to get by?

My doc, was kind enough, since I went from 12.5 mg of my pain med, then after the 2nd accident straight to 100mg. (remember, that I was started at 60mg. and worked myself down to the 12.5), So, now I get 60 mg/day.
I might not take all that.
I might be able to take a half of a pill, some of the time. Suffer a little... Yes?
And, that's just what I think my doc is comfy with.
I could take them all!
Easily!
Why feel ANY PAIN?

Well, I could give you several reasons!
But, it's better, imho, to take the least of meds possible, in concordance with your doctor!
And, You'd better make dam sure well, that you've got a smart one!

I wish I could say more than this.

Ya'll be well.
I REALLY need to get some sleep.....


peace on all,

Pete
ASB
AintSoBad is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Jennelle (04-15-2009)
Old 04-15-2009, 09:50 AM #4
dreambeliever128's Avatar
dreambeliever128 dreambeliever128 is offline
Magnate
 
Join Date: Nov 2006
Posts: 2,088
15 yr Member
dreambeliever128 dreambeliever128 is offline
Magnate
dreambeliever128's Avatar
 
Join Date: Nov 2006
Posts: 2,088
15 yr Member
Default Hi Jenelle,

I agree with Pete on this. I would be honest with your Dr. and tell him that sometimes you have to take extra meds and other times you can get around taking a little less.

It's too bad a lot of these Drs. don't get it. They should have to live with what we go through for one day.

I believe too that some Drs. are afraid of the laws that seem to keep hounding them about narcotics. I was just watching Fox yesterday and 39 states have passed laws that they have to keep up with what prescriptions they give out. A lot of people are going to Florida and changing amounts on their prescriptions and writing fake ones and they also said more people are dying today from prescription drugs then illegal ones.

I have Methadone here and I take it only in a flare anymore. I was able to go off of mine months ago and I do keep my Dr. up on what I do with them though.

I can't believe how strict they are with you. It makes me wonder if this Dr. hs dealt with other patients that did wrong and he takes it out on other patients or maybe he has been reprimended before by the ADA or some other overseers.

I signed a contract but it's not written in stone that I take mine the way we agreed on in the contract.

Narcotics do work for pain, he should read on this forum and see the percentage of people that are on them for pain.

I do hope you start feeling better soon.

Ada
dreambeliever128 is offline   Reply With QuoteReply With Quote
Old 04-15-2009, 10:48 PM #5
Dew58's Avatar
Dew58 Dew58 is offline
Member
 
Join Date: Jul 2008
Location: Oklahoma
Posts: 498
15 yr Member
Dew58 Dew58 is offline
Member
Dew58's Avatar
 
Join Date: Jul 2008
Location: Oklahoma
Posts: 498
15 yr Member
Heart

I thought there was a law concerning pain being properly addressed...Bill of Rights for patients concerning pain management.

Sorry your doc is being stubborn. We GO to PM's to get the meds we need for relief; then, they want biofeedback to be your pain med! UNREAL!


Dew
__________________

.


A Positive Attitude Will Assist Me Toward An Active Life, Once Again
.

WC Injury 03/24/07;Two Right Knee Surgeries on 5/22/07 and 01/16/08. Surgeons and Physical Therapists ignored my concerns of burning pain, swelling, and no improvement and getting worse. Diagnosed RSD/CRPS I/Sympathetically Mediated Pain Syndrome/Chronic Pain on 06/2008 by family doc;on 08/2008 and 12/2008 diagnosis confirmed by two WC PM Doctors: Both legs;hips; hands; and spine effected by this culprit. SSDI granted 01/2009.
Dew58 is offline   Reply With QuoteReply With Quote
Old 04-15-2009, 11:05 PM #6
Jennelle Jennelle is offline
Member
 
Join Date: Mar 2009
Location: Washington
Posts: 100
15 yr Member
Jennelle Jennelle is offline
Member
 
Join Date: Mar 2009
Location: Washington
Posts: 100
15 yr Member
Default drs

Quote:
Originally Posted by Dew58 View Post
I thought there was a law concerning pain being properly addressed...Bill of Rights for patients concerning pain management.

Sorry your doc is being stubborn. We GO to PM's to get the meds we need for relief; then, they want biofeedback to be your pain med! UNREAL!


Dew
good point!!!
Jennelle
Jennelle is offline   Reply With QuoteReply With Quote
Old 04-17-2009, 04:48 PM #7
quackingmoose's Avatar
quackingmoose quackingmoose is offline
Junior Member
 
Join Date: Apr 2009
Location: Pennsyvania
Posts: 19
15 yr Member
quackingmoose quackingmoose is offline
Junior Member
quackingmoose's Avatar
 
Join Date: Apr 2009
Location: Pennsyvania
Posts: 19
15 yr Member
Default

Yep! They Re going to start counting my boyfriends pills, so when we filled the prescription today, I had the pharmacist count the pills in front of us to make sure we he started with the correct amount.

probably a dumb question..but what is bio feedback?
quackingmoose is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Meds tshadow Thoracic Outlet Syndrome 9 02-20-2009 11:56 AM
New meds msarkie Multiple Sclerosis 3 03-20-2008 10:02 AM
No MEDS withmore Thoracic Outlet Syndrome 52 10-24-2007 08:58 PM
Went off my meds.... wishfulthinking Medications & Treatments 5 02-03-2007 03:55 PM
off meds bamyx4jc Parkinson's Disease 6 10-21-2006 11:47 PM


All times are GMT -5. The time now is 05:05 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.