Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 04-22-2009, 04:35 PM #1
buckwheat
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buckwheat
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Originally Posted by Jo*mar View Post
Maybe lazy is the wrong word that was used.

But I think the main complaint by many patients with oddball conditions...
is that if a Dr doesn't know or care to learn about a condition to be able to really help a person then they should just say so.

I mean if we can find a lot of the general info about our symptoms -- and maybe get close to figuring it out - why can't they?

If they aren't interested send us on our way or give a a referral to someone that might be of help..

Certainly MDs should have much better resources that us regular folks...I would hope anyway.

This is just my own opinion.
Dear Jo*mar,

I was given no hope at all by to many to know. I was told I was disabled and that I needed to accept it. I had some MD's research for me, but still could't help.

My reply was I needed my life back and to ever problem their is a solution. Alot of MD's I saw really cared, but they just didn't know what to do with me. I heard I am really sorry alot, they didn't know.


No matter what insuranse I had I never ever had any problem, getting referred out. Neither should anyone else as well with RSD.

With me nothing seemed to help, instead of any treatment helping I just got worse for several years. Never ever had a problem getting tested at any labs or nothing. But were they all accurate no.

With me, my immune system played a huge role. Hugs, Roz

Check your PM as well
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Old 09-26-2009, 01:42 PM #2
suz66 suz66 is offline
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suz66 suz66 is offline
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Hi, Pete: I appreciate your encouragement. I lost 60lbs about 10 years ago and kept it off for 7 years. Three years ago, I had a car accident with alot of soft tissue damage and then 1 year ago, broke my elbow which caused my RSD. I have been having pain in my hips and legs and have been put off from walking. I used to walk, do aerobics, bike, hike, etc. Needless to say, I have put the weight back on and am not looking forward to having to "shed" it again.

I think the same is true, not only of the body, of the brain. I have been battling rsd brain and am trying to read more and exercise my mind. I guess I need to push through the pain and make myself exercise my body too. I appreciate your "words of wisdom." I have only been battling this for 1 year and can't take any oral pain meds 'cause of allergies to them. Oh well, God is still good. Anywho, have a good one and thanks again. Suz66
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AintSoBad (09-26-2009)
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