Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 04-16-2009, 07:00 PM #11
DONTTOUCHIT DONTTOUCHIT is offline
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Hello Dew, I was reading a few of your posts yesterday about things that help. You were talking about a heating pad, I havent tried it yet but I have noticed that heat or keeping my arm warm seems to help. Although I still am in the early stages of this and I am hoping it stays that way . Thanks for responding .
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Old 04-16-2009, 07:06 PM #12
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Bass did your injury come from work ? Did Work Comp help pay for your training ? Tommorow I am going back to the Pain Doc to get different meds , Id like to try something different then Norcos for the pain(Stronger) . I never really took pain meds for more then a day or 2 so I am not sure if any or all of them knock you out or if there are some that dont . I know people react to meds different so I been reading up so I can kinda talk to the doc about them. I am glad that you been able to go back to work I sure hope that is in my near future I am bored beyond belief since I been off since Feb 2008.
Thanks I look forward to talking again.
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Old 04-16-2009, 07:16 PM #13
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Hello Jennelle, I am glad I have found this site also , Alot of good info in here as well as some very good people.

I have started a desense program with my Phsycial therapist , They use a old hard wash cloth which I am not sure it is helping any .It is very hard to keep going to therapy and having them do this to me , Going on 2 months of that now.

I go for the nerve blocks Tuesday and was wondering did you get any side effects from them ? Was it painful? Thanks telling me your experiences it does help alot to understand and to see what I may be in for.
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Old 04-16-2009, 11:25 PM #14
AintSoBad AintSoBad is offline
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Hello Dontouchit!
Welcome, but am sorry you're here.
I'm kind of new myself.

I've had this wonderful thing for 26 years, along with a couple of other goodies.
But, I'm alive.

I was taught early on, (well, it took 7 years for a diagnoses, agony).
Yes, it can go whole body, mine has.
But, you'll learn as you go, and getting a good mental attitude is imperative.
(You're not going to let this stop you, are you?)

TALK to your doctors. Take notes, carry a small notebook, and especially keep it on your nightstand, for those end of day notes. If you have a good PIM, or calander on your computer, whatever software you can use as a journal, will do good.

You may need a psychiatrist, pain management, someone to help you with your attitude, because we all get depressed. This is not a lifelong thing, but, you may need to check in occasionally.
And, of course the old saying "Use it Or Lose it".
Use that arm, as much as you can. Talk to your PT about it. Ask questions, good questions, the kind that bring more questions. You don't want to hurt it worse, because of the surgery, but some folks can "baby" the hurt too much, then the pain wins.

We call this the "Triangle of rsd care"
Doc = meds.
psych doc = your attitude
Exercise =keep moving.


You've found a great resource here, and lots of great folks!

PM me if you wish.

Ask questions.

Take Good Care!
and, Keep the Faith!

Pete
ASB
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Old 04-17-2009, 12:55 AM #15
loretta loretta is offline
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Hi Donttouchit,
I've been writing you and welcoming you for over an hour and I hit a bad button. I'm too tired now to start over but will repeat whatI wrote. Welcome and read lots and be careful and and make informed decisions. your friend, loretta
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Old 04-17-2009, 06:58 AM #16
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Quote:
Originally Posted by DONTTOUCHIT View Post
Bass did your injury come from work ? Did Work Comp help pay for your training ? Tommorow I am going back to the Pain Doc to get different meds , Id like to try something different then Norcos for the pain(Stronger) . I never really took pain meds for more then a day or 2 so I am not sure if any or all of them knock you out or if there are some that dont.
I am one of those people that developed RSD with no injury that I can recall. The only precipitating thing is that we had a lot of rain and almost everybody's basement got flooded - including mine. Everything got soaked, so I needed to make several hundred trips up and down the stairs, toting all the ruined items out for trash collection.

About a week later, my leg swelled to twice its normal size and turned the prettiest (ugliest) shade of purple. Of course, it was also super-sensitive to touch. Because there was no injury to speak of, it made diagnosis much more difficult. All of the doctors were looking at water-borne illnesses, or maybe malaria (in Wisconsin?)

So no, there is no Worker’s Comp, which could be either good or bad, depending on your WC carrier. I have been lucky that my regular insurance has paid for much of the treatment and medications – so far.

Don’t be surprised if it takes some trial-and-error to find the right combination of drugs that will work best for you. That is very common.

Take care,

Mike
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Old 04-21-2009, 12:03 AM #17
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Hello Loretta, I look forward to hearing from you !!

Just a little update on my RSD, My Pain doc says today she cant do the nerve block tommorrow because my Heart Doc wont take me off the asprin I take. Since the blocks would be every other week Id be off the asprin for too long!!! Ugghhhh

Pain Doc called and said there is one option that might work , Id have to have the blocks done where my Heart doc s hospital is and be done bye there pain docs, Plus Id have to be hospitalized for 2 days each block. Now my Work comp has been pretty good to me however I dont see them paying for this !!!! Big Problems on the horizon I think.

Also this past friday Pain doc put me on Fentanyl patches Which I dont know much about but seems very strong , Ill let ya guys know how it goes since there maybe others in here sometime in future that may run into same problem I am going to have.
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