I am glad you found this site, I am new here too and I love it! Everyone is so helpful and kind. Sorry to hear about your problems though. Have you started a desensitization program with ot? That helped with some of my numbness and hypersensitivity. Also I have had 6 nerve blocks and they helped at first but then only helped for a couple hours. It is important if you get one to go to pt as soon as possible after (especially for workers comp) to get the most out of the injection and to improve your strength. I hadn't heard about the injections making it spread but mine did to the other arm, the doctors still don't believe it but I know that is what it is. Hope this finds you feeling better.
Jennelle

Hello Jennelle, I am glad I have found this site also , Alot of good info in here as well as some very good people.

I have started a desense program with my Phsycial therapist , They use a old hard wash cloth which I am not sure it is helping any .It is very hard to keep going to therapy and having them do this to me , Going on 2 months of that now.

I go for the nerve blocks Tuesday and was wondering did you get any side effects from them ? Was it painful? Thanks telling me your experiences it does help alot to understand and to see what I may be in for.

Hello Dontouchit!
Welcome, but am sorry you're here.
I'm kind of new myself.

I've had this wonderful thing for 26 years, along with a couple of other goodies.
But, I'm alive.

I was taught early on, (well, it took 7 years for a diagnoses, agony).
Yes, it can go whole body, mine has.
But, you'll learn as you go, and getting a good mental attitude is imperative.
(You're not going to let this stop you, are you?)

TALK to your doctors. Take notes, carry a small notebook, and especially keep it on your nightstand, for those end of day notes. If you have a good PIM, or calander on your computer, whatever software you can use as a journal, will do good.

You may need a psychiatrist, pain management, someone to help you with your attitude, because we all get depressed. This is not a lifelong thing, but, you may need to check in occasionally.
And, of course the old saying "Use it Or Lose it".
Use that arm, as much as you can. Talk to your PT about it. Ask questions, good questions, the kind that bring more questions. You don't want to hurt it worse, because of the surgery, but some folks can "baby" the hurt too much, then the pain wins.

We call this the "Triangle of rsd care"
Doc = meds.
psych doc = your attitude
Exercise =keep moving.


You've found a great resource here, and lots of great folks!

PM me if you wish.

Ask questions.

Take Good Care!
and, Keep the Faith!

Pete
ASB

Hi Donttouchit,
I've been writing you and welcoming you for over an hour and I hit a bad button. I'm too tired now to start over but will repeat whatI wrote. Welcome and read lots and be careful and and make informed decisions. your friend, loretta