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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#11 | ||
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Senior Member
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By "ma." do you mean Mass?
If so, there are good docs at Caritas St. Eliz., Mass General, and Beth Israel in Boston. I have read that there are also some good docs at the Bayside Medical Center in Springfield. Generally, the pain centers at the hospitals are where you would call to set up your initial appts. Good luck. Don't mess around with a small town doc if you can help it... Sandy |
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"Thanks for this!" says: | rtmcmahon631 (04-21-2009) |
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#12 | |||
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Junior Member
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Bob, This is a great place for imput, as I am relatively new to this site. I have an SCS that I use for the knees down to the feet. I just had it put in Nov. 2008. I do believe that I have RSD in my spine now but I don't think my pd wants to admit it however, when they put it in I already had degeneration of the spine(athritis in my spine) so my spine aches anyway. The SCS helps the RSD in my legs but since I have other medical conditions, I can't use it all the time. There are some things I don't do without it. I am also on long term opiods as well as many other meds, 13 all together. I was diagnosed with RSD on June 19, 2007 a year after I broke my leg in three places and tore my ACL and the miniscus to the point where my ortho will not even consider fixing with a replacement, I also had bone infection. ![]() There is a lot of sites that deal with RSD and talk about SCS and despite what the sites say this too is an individual reaction issue, and is a large desision and it is important to learn about the RSD as well as the SCS ![]() ![]() ![]() ![]() tjbird |
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"Thanks for this!" says: | rtmcmahon631 (04-21-2009) |
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#13 | |||
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Junior Member
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My primary did not know much when I first went to him. (small town) however I have been lucky because he has learned more about it since I have been diagnosed with the RSD. My pain drs are in a bigger nearby city that I travel once a month to check in and get my meds. However when I went to seek some mental incuragement, all they knew about RSD was that they heard it was a "bear" needless to say you can find me all over the web as it is my therapy. But as far as a Pain Dr check out a larger medical center, I travel an hour each way, and that is OK with me.
tjbird |
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"Thanks for this!" says: | rtmcmahon631 (04-21-2009) |
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#14 | ||
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Junior Member
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Hi Bob,
Did you have a sympathetic nerve block to help the RSD? have you tried pt, acupuncture? good luck ![]() Kate |
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"Thanks for this!" says: | rtmcmahon631 (04-21-2009) |
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#15 | |||
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Member
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Welcome to the group.
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__________________
. A Positive Attitude Will Assist Me Toward An Active Life, Once Again . WC Injury 03/24/07;Two Right Knee Surgeries on 5/22/07 and 01/16/08. Surgeons and Physical Therapists ignored my concerns of burning pain, swelling, and no improvement and getting worse. Diagnosed RSD/CRPS I/Sympathetically Mediated Pain Syndrome/Chronic Pain on 06/2008 by family doc;on 08/2008 and 12/2008 diagnosis confirmed by two WC PM Doctors: Both legs;hips; hands; and spine effected by this culprit. SSDI granted 01/2009. |
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"Thanks for this!" says: | rtmcmahon631 (04-21-2009) |
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