Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 04-17-2009, 07:49 AM #11
SandyRI SandyRI is offline
Senior Member
 
Join Date: Dec 2008
Location: Rhode Island
Posts: 1,056
15 yr Member
SandyRI SandyRI is offline
Senior Member
 
Join Date: Dec 2008
Location: Rhode Island
Posts: 1,056
15 yr Member
Default

By "ma." do you mean Mass?

If so, there are good docs at Caritas St. Eliz., Mass General, and Beth Israel in Boston. I have read that there are also some good docs at the Bayside Medical Center in Springfield.

Generally, the pain centers at the hospitals are where you would call to set up your initial appts.

Good luck. Don't mess around with a small town doc if you can help it...

Sandy
SandyRI is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
rtmcmahon631 (04-21-2009)

advertisement
Old 04-17-2009, 08:50 AM #12
tjbird's Avatar
tjbird tjbird is offline
Junior Member
 
Join Date: Mar 2009
Location: Shenandoah Mountains of Va
Posts: 37
15 yr Member
tjbird tjbird is offline
Junior Member
tjbird's Avatar
 
Join Date: Mar 2009
Location: Shenandoah Mountains of Va
Posts: 37
15 yr Member
Default Don't Know What to Do

[FONT="Arial"]
Bob,
This is a great place for imput, as I am relatively new to this site. I have an SCS that I use for the knees down to the feet. I just had it put in Nov. 2008. I do believe that I have RSD in my spine now but I don't think my pd wants to admit it however, when they put it in I already had degeneration of the spine(athritis in my spine) so my spine aches anyway. The SCS helps the RSD in my legs but since I have other medical conditions, I can't use it all the time. There are some things I don't do without it. I am also on long term opiods as well as many other meds, 13 all together. I was diagnosed with RSD on June 19, 2007 a year after I broke my leg in three places and tore my ACL and the miniscus to the point where my ortho will not even consider fixing with a replacement, I also had bone infection.
There is a lot of sites that deal with RSD and talk about SCS and despite what the sites say this too is an individual reaction issue, and is a large desision and it is important to learn about the RSD as well as the SCS If you don't understand something at a RSD site, come back here and ask your question this group has a lot of experiences and you can get imput We are all here seeking the same thing, how we can best deal with this disease that is different with each person that unfortunately endures it
tjbird
tjbird is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
rtmcmahon631 (04-21-2009)
Old 04-17-2009, 08:58 AM #13
tjbird's Avatar
tjbird tjbird is offline
Junior Member
 
Join Date: Mar 2009
Location: Shenandoah Mountains of Va
Posts: 37
15 yr Member
tjbird tjbird is offline
Junior Member
tjbird's Avatar
 
Join Date: Mar 2009
Location: Shenandoah Mountains of Va
Posts: 37
15 yr Member
Default

My primary did not know much when I first went to him. (small town) however I have been lucky because he has learned more about it since I have been diagnosed with the RSD. My pain drs are in a bigger nearby city that I travel once a month to check in and get my meds. However when I went to seek some mental incuragement, all they knew about RSD was that they heard it was a "bear" needless to say you can find me all over the web as it is my therapy. But as far as a Pain Dr check out a larger medical center, I travel an hour each way, and that is OK with me.
tjbird
tjbird is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
rtmcmahon631 (04-21-2009)
Old 04-19-2009, 05:53 PM #14
baseballfan baseballfan is offline
Junior Member
 
Join Date: Mar 2009
Location: California
Posts: 94
15 yr Member
baseballfan baseballfan is offline
Junior Member
 
Join Date: Mar 2009
Location: California
Posts: 94
15 yr Member
Default Rsd

Hi Bob,

Did you have a sympathetic nerve block to help the RSD? have you tried pt, acupuncture? good luck

Kate
baseballfan is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
rtmcmahon631 (04-21-2009)
Old 04-20-2009, 02:10 PM #15
Dew58's Avatar
Dew58 Dew58 is offline
Member
 
Join Date: Jul 2008
Location: Oklahoma
Posts: 498
15 yr Member
Dew58 Dew58 is offline
Member
Dew58's Avatar
 
Join Date: Jul 2008
Location: Oklahoma
Posts: 498
15 yr Member
Smile

Welcome to the group. We uplift each other, and you will always have a place to come to whenever you need a helping hand.
__________________

.


A Positive Attitude Will Assist Me Toward An Active Life, Once Again
.

WC Injury 03/24/07;Two Right Knee Surgeries on 5/22/07 and 01/16/08. Surgeons and Physical Therapists ignored my concerns of burning pain, swelling, and no improvement and getting worse. Diagnosed RSD/CRPS I/Sympathetically Mediated Pain Syndrome/Chronic Pain on 06/2008 by family doc;on 08/2008 and 12/2008 diagnosis confirmed by two WC PM Doctors: Both legs;hips; hands; and spine effected by this culprit. SSDI granted 01/2009.
Dew58 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
rtmcmahon631 (04-21-2009)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
i dont know what to do tara General Mental Health & Emotional Support 6 12-21-2009 12:52 AM
rsd:dont know what to do rtmcmahon631 The Stumble Inn 2 04-16-2009 09:40 AM
I dont know Iffynah Reflex Sympathetic Dystrophy (RSD and CRPS) 11 11-03-2008 01:52 AM
I just dont know any more wildberry2277 Reflex Sympathetic Dystrophy (RSD and CRPS) 9 01-22-2008 12:33 PM
new -dont know what i am doing Steff New Member Introductions 9 08-10-2007 12:54 PM


All times are GMT -5. The time now is 07:19 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.