You can also click any members username on their posts and select the option from the list that appears- find more posts by buckwheat
{or which ever user you clicked on}

all their posts will come up and you can scroll thru the list to find specific topics. It saves a lot of typing unless you don't find what you are looking for.
I'll see if I can locate a few of Roz's main threads about what helped her.

Jo mar,

If your up for it, maybe you could find the TOS ones. This surgery could of been avoided for me. I came up severe, I had no choice but to have it because of high risk of loosing my right arm. I also want to say I believe people can have TOS for different reasons. Hugs, Roz

Roz,
Looks like you didn't post much in the TOS forum here or I haven't came across them yet.
all the old posts from the Braintalk forum were lost in the crash of 06.
I'll keep looking though.

Well my internet has slowed to a crawl, but if you got to Roz's earliest posts you can follow her progress and treatments.

Hi Jo*mar,

You are very knowledgeable on the computers. Maybe i posted my TOS nightmare on B/T?

I am living in an apartment for another few weeks. Most of my medical records are in my home. I will look for them. I just don't want anyone with RSD to have to have the TOS surgery unless it's 100% necessary.

Having had TOS/RSD DX is what not like winning the daily double. Again I want to add people have TOS for very different reason's, I was Vascular.

Much love, Roz

i sometimes wonder if it isnt the hardware that is in my foot that is the cause of this? i dont know i have been through pt 3 lumbar blocks and 2 beir blocks and waiting for ketmaine may 1st. i am going through a hard time because i used to be a very active person and having kids as younge as 6 they need me but yet the pain runs my day to day life it is not what i am going to do today it is what will the pain allowe me to do. i will take you up on your post buckwheat and pm you, I NEED TO KNOW HOW YOU GOT TO WHERE YOU ARE
and i think some others would like to know.. like i said we are here to teach or to learn and i want to learn. thank you

Dear Michelle,

Their is a test called a Neurography, this is like a very detailed MRI. Just a thought but maybe the hardware is causing nerve entrapment?

Here is a link about it:
http://www.neurography.com/

Most radiologists are not trained to read nerves so have it looked at by a Neuro. MD. If I was you I would go to a different Neuro. not the one that did the OR procedure.

Do you have inflammation?

Hugs, Roz

Dear Michelle,

If you have inflammation. You have a 25% percent infection rate after surgery. You can have an infection with absolutely nothing showing up in your blood work.

On any treatment I have had, I try to balance risk and benefit if that makes sense.

Hang in their, Roz

I had two PM doctors--both of them told me to get the hardware out. I think it made a difference for me. The screws were literally touching on the nerves, and everytime I bent my toes I could feel the nerves scrape on the hardware. How can that NOT affect someone? So I took the plunge and took them out. The surgeon I had was very knowledgable of RSD and referred by the pain docs. I am very happy the hardware is out. At the same time, I don't know that it is the answer for everyone, and in some cases surgery makes it worse. See what your docs think. In my case, some of the issues had resolved before surgery (it was no longer as swollen, etc.). I don't know if they'd recommend surgery for someone who has very active RSD at the time.

Jo*mar,
Thanks for that advice,
after I wrote, I thought I may be asking Roz to re-write something that has already been written. Sorry about that!

This place is truly like an Encyclopedia of experience!

Pete
asb