Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 04-19-2009, 01:17 AM #1
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thanks. the neuro is thinking that i am having both vascular and cluster head aches at the same time ,, yea me !!! one stemming from my car accident and the other from the RSD
thanks for the help.. i am hopping that this helps other wise its off to botox land at 500$ every three months (fingers crossed )

carrie
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hope this finds all in less pain
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rsd DX 99 had since 98 full body and organ involement,fibro ,pelvic pain ,etc,,,,,,




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Friend2U (04-19-2009)
Old 04-19-2009, 03:00 AM #2
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Quote:
Originally Posted by angelrsd View Post
thanks. the neuro is thinking that i am having both vascular and cluster head aches at the same time ,, yea me !!! one stemming from my car accident and the other from the RSD
thanks for the help.. i am hopping that this helps other wise its off to botox land at 500$ every three months (fingers crossed )

carrie
Carrie,
I even googled it, and it's an odd Rx.
But, seems to be one of those Rx that are to Prevent headaches.
I take Zonegran, topomax for that. I get some wicked headaches, before and SINCE the Tbi.

It seems to me to be a "trial" type thing.
Ask your doc!
What is he trying to do, and, some of these others might work better than that one!
Everyone is different, dear!

I so wish, that your headaches can be managed! You're too young for this!


Pete
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dreambeliever128 (04-19-2009)
Old 04-19-2009, 11:32 AM #3
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Default Hi Carrie

Crap. Ooops I tried to paste a site about nortriptyline but messed up somehow. Anyway if you google this there is a bunch of info about dizziness and migraines etc. I didn't read much of it I'm ashamed to say.

However, Nortriptyline is a tricyclic antidepressant related to amitriptyline (Elavil). I do know that initially these tricyclics can make you really drowsy, dizzy, constipated, urinary retetive and some other stuff I can't remember. Some of this passes pretty quickly. On a brighter note, they are relatively good pain managers and work on serotonin and norepinephrine levels.

At any rate, as I know you know, you should talk with your physician about this.

I hope that you are feeling better and again I'm so sorry about what's happened lately in your area.

ellie
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Old 04-19-2009, 12:08 PM #4
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I was put on a tricyclic anti-depressant many years ago, just to see if it would help with the pain. Tricyclic anti-depressants are commonly prescribed in RSD, they are older generation anti-depressants but work better for RSD (read that somewhere, don't ask me where). For me, the anti-depressants didn't do a thing, except help me sleep better. For that reason alone, I wasn't allowed to take them, because of the many possible side-effects. The newer ones were tried also (SSRIs) and I had an adverse reaction to them. So the anti-depressants were out the window quite fast.
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All the best, Marleen
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Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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