Hey Carrie

I tried that med when I was first diagnosed - I had trouble sleeping when I took it and it didn't do anything for my pain. But maybe it will help you since we are all different.

I currently use Ambien CR 12.5 at night and take Topamax 75 mg twice a day. I also just started on 5mg of methodone 3 times a day, so I'm not sure how it works just yet.

do you know whether you can tolerate Topamax? Since I started taking it none of my headaches have advanced to that "migraine" state. And the Ambien does help me stay asleep for a few hours at a time most nights.

Sorry about your head. That's my main problem also. I hate it. Good luck.

sandi

i cant take topamax because it causes 1/ kidney stones and 2. more infections with me .. i have kidney issues since my RSD has gone there.

i have taken this off and on for years with no avail. the noratriplyne has been helping and helping me sleep. but im in a cycle right now apparently i have cluster headaches which i guess the only thing worse pain wise is RSD go figure that i would get both LOL so i go back to neuro wednesday and see if they can give me a dose between 25-50 mg because the 50 i wasnt loopy i just couldnt wake up and thats a problem LOL

im glad that topmax worked for you.. i am also deathly allergic to really migraine meds like imitrex and the rest the med. that is in them all cause me to stop breathing..


carrie

Angel,
Carrie,
I hope you take a "list" or something with you to your neuro this week.
Clusters are a real mind game. (meaning something worse)..
I get them too, but I can tolerate the meds that you cannot. So, I don't hafto live with them constantly.
This AM, I woke with a "Neck" headache, and it got worse through the day, even the new "Treximet" (Imetrex with Aleve, which usually kicks tail) did nothing.
Had to "crack" my own neck.
Wonderful.

I know what you're going through, I did it too, with children, and, they're a blessing, because You've GOT to do, what you've got to do!
They depend on you.

I feel your pain.
OUCH!


pete
asb