im sorry that we had to meet like this
i looked up compartment syndrome .. sounds awfull.. has he alot ofo burning pain too or electrical type pain.. there seems to be similar things goin on
maybe he has both.. has he had any type of test for rsd
sweat test thermography bone scans or vascular testing .. there is alot of us with multi things goin .. i hope that they can figure it and treat so that he can have soem relife soon
hang in there ask away if need be we will help out as much as we can
welcome again
carrie

Welcome to the forum. I'm sorry to hear that both of you are dealing with this.

I read about the Compartment Syndrome as Carrie did and it does have a lot of the symptoms as RSD.

What he might be dealing with is the spread of RSD but if the Drs. right he may have both. It sounds like they may be able to do the surgery for the CS. If they do want to do surgery, make sure you ask them to do a block first to keep the RSD from spreading.

Some people don't think surgeries are good ideals with RSD but there comes times when they have to be done and and a block can possibly keep it from spreading.

As far as Drs. it's very hard to find a very good RSD Dr. They have to be aggressive and not take their time about dealing with it when it first happens. I have seen people go into remission though after having it for years with blocks even though they don't always help everyone.

Good luck to both of you. Hang around. You will learn a lot here and meet some great people.

Ada

I hope you'll know what's what soon. You've waited long enough! It's time for action, for someone to do something.

I know it's an awful feeling when even the doctors don't know what's going on.

Good luck to you both. Hope all goes well.
Let us know what happens Friday!

I am sorry about your husband. I read I think on this just now. What tests is he having to dx this? I have a confusion at the moment between my RSD and PN because there are a lot of similar symptoms. I guess I would ask the doctor if it could possibly be the spread of rsd, what caused this such as was it from compensating for the rsd area,underlying causes,etc.What would be the difference in treatment if it was this dx vs rsd. I understand how this effects the whole family as I have this condition but my mom cries with me from me suffering. Try to stay in the day though I know how hard. I know a girl and on my hard days I think of her who was in a wheel chair,had to be out of school for a very long time,and barley could eat from her rsd. Then she got a scs after many other treatments that did not work and she is walking,back in school,etc. Let us know how he does and the outcome. He is lucky to have you as I know how important real time family support is to this.