I can't believe this doctor had your husband run. I won't even let a doctor touch me and all the ones who specialize in rsd have not pushed it at all and have understood. This is a huge flag that you need another opinion. I am not sure how far you are from Ohio and I have mixed feelings about my care at Cleveland Clinic but I saw 2 pain docs there who deal a lot with rsd and I know a girl who has a lot done with them and has had good results. I also know she went to Rush Hospital though I was not sure if they deal mostly with children or only but thought I would mention that. If you want you can email me too.

ITA!

How absolutely barbaric. I hope that the flare-up he has from this won't make it spread. No knowledgeable RSD doc will push you to and through a flare-up or pain.

I think one of the best questions of any doctor, when you suspect rsd, is
"How many times have you diagnosed rsd?"


pete
asb

Does anyone know of any specialist in this area/region?? It'd be nice to stay closer to home. Car rides bother him...

Also, thanks for everyones feedback. It means a lot to us..

He made Corey run to diagnose Compartment Syndrome.. he wanted to do a less invasive procedure to test for it. He thought that poking around with a needle would flare up the RSD...
Don't look at me, I didn't agree with it.

Anyways-
Thanks.

Courtney

Hi. I drove from MI to OH. I saw Dr Stanton Hicks and Dr Mckale if you google or email me I will tell you more. Dr Covington at the day program as well and he deals with rsd. I did not end up doing the treatment with them but my friend sees Dr Stanton Hicks and he helps her a lot. I do know Rush Hospital deals with RSD but like I said I am not sure if it is childrens only as the person I know that went there for there day program was 17. If you call the hospital and ask for pain management and ask who and if they have an anestesolgist who deals a lot with rsd that is what I would do. I am not sure if you were talking about Philli and Dr S but he is booking into 2010 of Oct that may have changed though. Stay strong.

Could I possibly get the information to the Cleveland Clinic?? We live in Illinois, so Ohio isn't too far of a drive...

Alot closer than PA. =)


Thanks Again!!!



Courtney

Wow, Dr,s can do more damage to our bodies & minds. I just wish they would say "Hey, I don't have a clue, but here is the name of a dr that deals w nothing but your problems". Like that's ever going to happen.

I would suggest that first and for most you Tell Corey to become his own patient advocate. You guys need to research and find Dr's that know RSD inside & out. This disease is a MONSTER and you need to be aggressive.

Talk with him, keep communication open, but do your research. God bless
& gentle hugs

Renee'

I wish I could go back to the day before I had surgery and stopped it. I had a hip replacement after being diagnosed with RSD and it put a gas pedal on the RSD- It has spread from just my foot to full body with muscle wasting ....It is so horrible. I wish I could go back to the days where it was just in my foot. Do a lot of research and proceed with caution!!!

Deb