Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 04-23-2009, 09:53 PM #1
Imahotep Imahotep is offline
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It's said to have about the same efficacy as amputation; complete relief in about 10% of cases and most of the rest it makes it worse.
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Old 04-23-2009, 10:02 PM #2
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There are so many different treatment options; it's surprising they would want to try this. It does not have a favorable history, and I don't think most docs would even consider this anymore. I think with this disorder we want relief so bad we are willing to do anything. But honestly, I wouldn't do this. No way.
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Old 04-23-2009, 11:59 PM #3
AintSoBad AintSoBad is offline
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I agree with all before me.
After 26+ years. A "Sympathectomy" is an "Old School" type of "cure".
It didn't work then, it won't work now..
It can be proven out, with a nerve "block". Using the numbing medication, does your pain stop? Of course not. You're numb, but the pain remains. This has been proven out 20 years ago, in my case.
Don't Let them Do It!


Find better "Management" doctors, not rodeo round up doctors!
Find someone who understand, and doesn't want to make you a test dumbie!

My best, and Humblest wishes to you.....


Pete
asb
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Old 04-24-2009, 07:24 AM #4
daniella daniella is offline
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Hi. This may be a little different but when I first developed this I was looking into tts surgery or nerve surgery. I was told this is the last possible thing you want to do because it can damage other nerves in the process. Surgey I have read with rsd is really the last thing you want to do. I hate to ever discourage people in case I am wrong but I would really get a few opinions on this before you do it.
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Jennelle (04-28-2009)
Old 04-24-2009, 08:09 AM #5
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Of all the procedures I've read dealing with RSD this procedure is one that seems to be the most negative. Very evasive and risky. My wife who has full body RSD ruled it out years ago.
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Jennelle (04-28-2009)
Old 04-24-2009, 11:07 AM #6
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I think permanent nerve blocks like that have long been sworn off by knowledgeable doctors.
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All the best, Marleen
=====================
Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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Jennelle (04-28-2009)
Old 04-24-2009, 11:31 AM #7
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Jennelle, You need to Pm about this. My best friend had this done with disatrous results. Her story is very similar to DianaA's . SHe would give anything to turn back the clock & never had done this. She also had a lung puncture which turned her RSD internal. SHe now has heart problems & swallowing problems because the RSD is everywhere in her chest up to her throat. She just found out she may be able to sue the doctor that did this to her for malpractice. When she walks she feels like a lightening bolt going up her spine with every step. Her Spinal Cord Stimulator (SCS) wont work in that area to help her because she doesnt have the nerve there to conduct the current. If you want to talk to her I will do by best to saee if I can hook you up. I think this is serious enough that you need to hear these stories before you consider doing something that ireversible. I hope to hear from you soon.
Hugs, Denny
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