Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 05-08-2009, 08:02 AM #19
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Join Date: Mar 2009
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Quote:
Originally Posted by AintSoBad View Post
To saddle it onto people who actually live with this pain, not the hollywood addiction syndrome, is CRUEL.
Nothing less.

I've posted it, now it's time for us to all write to these outlets who have helped her perpetrate her hoax, and make a voice for ourselves, and others like us!

I fully agree with you.

IMMHO Ms. Abdul needs to make an urgent statement about this. RSD is a condition that many serious people are fighting to get awareness for, *struggling* to get awareness for. She has no right to ruin the work of many renowned organisations such as RSDS.org but she almost singlehandedly did and is doing that. Doubts about her condition are increasing all the more. I fear that people will associate her drug addiction problem with RSD, and then where are we?

If she is an RSD patient, then what the heck is her agenda?

OTOH, if a celebrity brought cancer into a bad spotlight because of an addiction problem, people wouldn't associate the cancer, the condition itself, with the addiction problem. They would view them as two separate issues. They would say, "poor thing, the cancer is probably too much". Why won't they be able to do that for RSD?

It is, however, VERY bad that an addict has to bring RSD into the spotlight like this. I would feel deeply ashamed in her place. It's no time to start making excuses for an addiction problem by saying you have a condition called RSD and that you can't help it. If she can't see the kind of damage she is doing by that, then I wonder...
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All the best, Marleen
=====================
Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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