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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Round two

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Old 04-24-2009, 02:03 AM #1
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Default Round two
I'm going back down to LA on the 30th to have my second ketamine infusion on the 1st. I'm hoping that my doc will increase the dose a bit, and I can get more than 2 months pain/drug free. I'll let u guys know how it goes when I get home on the 2nd.
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ALASKA MIKE (04-24-2009)
Old 04-24-2009, 06:04 AM #2
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Best wishes to you, Andrea!!! I will certainly keep you in my thoughts and prayers!! PLEASE keep us posted as you're able and let us know how you do!!

Hearts.....
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Old 04-24-2009, 07:22 AM #3
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Best wishes. I hope you find relief.
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Old 04-24-2009, 04:46 PM #4
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I will be thinking of you and will keep you in my meditation prayers.
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WC Injury 03/24/07;Two Right Knee Surgeries on 5/22/07 and 01/16/08. Surgeons and Physical Therapists ignored my concerns of burning pain, swelling, and no improvement and getting worse. Diagnosed RSD/CRPS I/Sympathetically Mediated Pain Syndrome/Chronic Pain on 06/2008 by family doc;on 08/2008 and 12/2008 diagnosis confirmed by two WC PM Doctors: Both legs;hips; hands; and spine effected by this culprit. SSDI granted 01/2009.
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Old 04-24-2009, 06:13 PM #5
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Yes, Be Safe, and Well!
Best of Wishes!

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Old 04-24-2009, 06:27 PM #6
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You have been and will continue to be in my thoughts!

Biggest of Hugs,

Karen
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Old 04-26-2009, 03:17 PM #7
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Good Luck Andrea! I really hope all goes well and that you are able to get even longer pain-free this time!!!

Please know that I will be thinking about you and if you ever need anyone to talk to, I am here for you!

Please keep us updated when you can! Much love and support as you go through all this!
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Old 04-27-2009, 06:37 AM #8
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good luck andrea i will be thinking of you and praying for you.. i hope that this helps you with the pain.. talk to ya soon

carrie
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hope this finds all in less pain
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rsd DX 99 had since 98 full body and organ involement,fibro ,pelvic pain ,etc,,,,,,




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Old 04-27-2009, 08:00 AM #9
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Default Good Luck Andrea,
Sure hope this does the job for you.

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Old 04-28-2009, 01:50 AM #10
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thanks everyone! as of now the pain has made its way up to my shoulder in my left right arm. my right arm and foot are still pain free from the first k infusion. i'm keeping my fingers crossed that all the pain will stay away for significantly longer than 2 months like the 1st one did.

i started working at a hotel this week, which is what i was doing pre-rsd while i was in college. so i'll be giving it the 9 month trial run (which is what is allowed by social security/disability) before they start deducting from ur benefits. so i'm hoping over summer i'll not only be able to pay off most of my credit card stuff but also save up in case i'll need a 3rd infusion. my parents have paid for the 1st and now the 2nd one, so i really want to be able to have the money set aside and ready for when i need a 3rd one. i'm gonna see if there's a way i can make a savings account that is to be used for medical bills where social security won't count that money as income so i don't have to worry about my benefits being deducted or taken away after the 9 month trial period. i'm gonna go down to the office tomorrow and talk to them about it.
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