Artist,
I just had scar tissue removed from my navel down to my pelvic area and it won't do anything for my CRPS but it sounds to me like he thinks it will. I still have RSD in my pelvic area along with other parts of my body. I have a pain patch in the lower left pelvic area tonight. Sorry I hope I'm not being too grapic for anyone. All I'm saying is I don't understand why he would think removing scar tissue would help the CRPS.

They also keep talking about treatment in the early stages of CRPS, I don't believe that and they seem to be using that to deny her treatment.

It's sad though that she is trying to get money for a treatment that doesn't sound like it would help her. I would think if she got the money it would benefit her to use it in other areas such as pain pumps, blocks, SCS, triggerpoint injections and other things that seem to help people.

This is just my opinion, I hope I'm not saying something that might offend anyone.

I don't believe how lowdown WC is but then again that goes into the Government mess we have today and we can't go there on here, I know that.

The big companies such as WC, pharmaceutical, oil companies, Medical companies, and several others are really takeing advantage of what is being handed to them today on a silver platter.

Sorry I got off of what we were talking about but it just makes me so mad to see how the elderly and disabled have been left behind.

By the way, I heard Medicare is going to be cut by 5% on the news today.

I had blue cross year ago and they wouldn't even pay for my ear surgery and I had full coverage.

I'm not saying don't check into this procedure, please don't think I'm discouraging you from checking out anything that might help you.

take care Artist.
Ada

Hi Ada,

No, I wasn't thinking of it for myself, not at all. I reckoned that either this surgeon had come up with something I hadn't heard of before, or that, as you say, the surgeon thinks it will help RSD, which seems nonsense, or that the journalist has misunderstood the complications of her condition.

Vic came up with the word I was looking for - radiculopathy. I know that removing old adhesions can help considerably for things like TOS, Fibrosis etc, and it sounds like she has something along those lines; plus nerve compression. Shame the journalist didn't tell us more about her condition.

As it stands, I think the story is very misleading for people who don't know about RSD, because it sounds like all you need is an operation to cure the condition.

Anyway, thought I'd better see if I'd missed some new "miracle cure"....drat, wouldn't that have been nice!!

BTW, thanks Vic for explaining it to me, saved me having to look up those med terms for myself . I kind of wish that lady could see this thread...

Oh, and Ada, no you don't get thrown off this board for bringing up politics (different rules, much more liberal)....

all the best

I realize this is a very old post. My wife's doctor suggested that she may want to see this doctor "Dr. Gabor Racz". It seems the hospital, The International Pain Institute in Texas where he practices is supposed to be on the cutting edge in treating those specifically with full body RSD. Anyone have a take on this?

jim

Jim,
Definitely put some research into background info on the doc. And if he suggests any procedures you are uncomfortable with, you are always able to get a second opinion. If this is an old article, perhaps he is now doing different techniques for treating pain. Although the article is scary, as it seems totally disjointed for a RSD patient, make your own opinion based on your experience. Just my two cents. :P

Thanks elijjennings. Absolutely! This procedure is one my wife would never ever partake in. Thus the reason I brought this thread back to life. He may have progressed and learned plenty from the old and very dangerous procedures of the past. What I found interesting in what my wife's doctor said is they really are interested in those with full body RSD, those who've had the disease for sometime and are not narcophobiacs.