Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 07-14-2009, 10:56 PM #21
Imahotep Imahotep is offline
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Imahotep Imahotep is offline
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Originally Posted by Millerprof View Post
I am a firm believer that the immune system plays a role in RSD. I personally believe that my immune system was taxed before my surgery for a number of reasons, and therefore my immune system wasn't able to deal with surgery effectively. This may seem like a stretch, but I've been looking at the similarities with Autism (although obviously the symptomology is different, both are neurological). There are a lot of people with autism that have an improvement in symptoms after doing things to clean up their immune systems detoxing, changing diet getting rid of yeast, gluten, casien, cleaning up their gut--getting rid of bad bacteria and introducing the "good" and even getting rid of parasites, going organic so it's one less thing for the immune system to deal with (processing pesticides), taking different supplements. If this can help with a neurological problem like autism (which was thought to be "incurable," than why not RSD, if it really is related to an immune problem? I actually did try quite a bit of this, as I was reading "Mother Warriors" as I was going through HBOT. I'm not sure how much it played a role in my improvement compared to everything else I've tried, but I AM better now. I haven't stuck with the diet, though, after I began to feel better.

It's interesting that you mention autism since I have a little asperger's in all probability. The last neurologist I asked about this condition asked me to spell it for him.

This is a very interesting thread. I skimmed it too much the first time through.
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Old 07-15-2009, 07:32 AM #22
jenno jenno is offline
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Default Infection Connection/Immune System Response

Hi Imahotep,

I agree that you are likely on a good path. We have seen that our daughter's pain responds to antibiotics as well as to detoxification and immune boosting treatments.

She recently had a positive Lyme test with a confirmed diagnosis of Masters Disease (tick-born infection that mirrors Lyme) by a Lyme Literate MD.

Her Lyme doctor's approach is to treat slowly. It is thought that she has had this for over 6 six years, and too much too fast would overwhelm her system ... so he is treating her with low doses of oral antibiotics, pulsed every other day. Increased frequency has caused her to have herxheimer reactions, a good sign that we are getting the bacteria but an indication that toxins are being produced quicker than her system can eliminate them. She is also doing hyperbaric oxygen treatments.

In addition, she recently started getting IV vitamin/glutathione treatments in an effort to help her detox and to boost her immune system. She has mild herx reactions to these as well. I have been researching and have found that many are benefiting from the glutathione for several neurological conditions.

Apparently, there are numerous viruses and co-infections that can come along with a "Lyme" diagnosis. Some believe that there is this connection in many who have received MS, Autism, ALS, Alzheimer's, Parkinson's, Fibromyalgia, RSD, etc. diagnoses, which ties in with you thinking about Asperger's.

Keep searching. I pray that your quest will bring you wisdom and relief.

Jeanne

Last edited by jenno; 07-15-2009 at 07:52 AM.
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