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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 04-27-2009, 07:01 PM #11
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Originally Posted by Grammadur View Post
They think it started with an ear infection. I'm on antibiotics and will have another brain scan in a couple of weeks to make sure it hasn't spread. I do feel better.
Thanks
Sally
Hi Sally,

If you feel better on antibiotics already that's wonderful news. Do they know the certain bacteria that caused the ear infection? The reason why I am asking is alot of bacteria have cell, L form's and cyst form's. In other words very tricky at times, so you can take a antibiotic for L form that can put the infection into a cyst form. If it is that type of infection you might need 2 different antibiotics. If they can pin point the ear infection it just would be better for you.
Hugs, Roz
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Old 04-27-2009, 07:04 PM #12
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Confused Thanks Carrie
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im glad that they caught this as this is a moor infection and can cause hearing loss if you werent already told..
but like dreambeliever told ya please be careful blaming everything on RSD as this is dangerous as i know. this past thanksgiving i started to have stomach pain but thought nothing about it since i have pelvic pain problems bladder and stuff like that . so i wasnt unreasonable that i would sometimes have horrible stomach pain well what i thought was a virual infection for 2 wks turned out to be my appendix that came very close to rupturing.. please listen to your body its telling you some thing..

carrie
Appendicitis is exactly what I was thinking of. If I didn't feel the earache, what other symptoms am I missing? I have to get used to this body now with pain medication. It's my new normal.
Sally
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Old 04-27-2009, 07:09 PM #13
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Hi Sally,

If you feel better on antibiotics already that's wonderful news. Do they know the certain bacteria that caused the ear infection? Hugs, Roz
The diagnosis was made with a brain scan, MRI, so no specimen was obtained for a culture and sensitivity. IF the infection does not go away (and mastoiditis can be difficult to cure and is known to reoccur), then they'll have to in for a swab.
Sally
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Old 04-27-2009, 07:13 PM #14
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Default Hi Roz
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Originally Posted by buckwheat View Post
Hi Sally,

If you feel better on antibiotics already that's wonderful news. Do they know the certain bacteria that caused the ear infection? The reason why I am asking is alot of bacteria have cell, L form's and cyst form's. In other words very tricky at times, so you can take a antibiotic for L form that can put the infection into a cyst form. If it is that type of infection you might need 2 different antibiotics. If they can pin point the ear infection it just would be better for you.
Hugs, Roz
Roz,
Are you a doctor? You seem to have alot of medical knowledge. Yes I am on two antibiotics, Clindamycin and Cefdinir.
Sally
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Old 04-27-2009, 07:19 PM #15
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Wow, good thing they caught that! What do they need to do to treat the infection? Antibiotics?
Yes I am on 2 antibiotics - Cefdinir & Clindamycin. I guess I'm glad my face went numb because I had no other clue.

Sally
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Old 04-27-2009, 08:56 PM #16
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The diagnosis was made with a brain scan, MRI, so no specimen was obtained for a culture and sensitivity. IF the infection does not go away (and mastoiditis can be difficult to cure and is known to reoccur), then they'll have to in for a swab.
Sally
Hi Sally,

I have someone very dear to me with that name. No, I am not even in the medical field, I never ever cared for school much.

One of my MD's calls me MD Roz, I just am one to question every thing about my health. I certainly have an invested interest in that one.

I was rasied with some medical background, I also have Docs. in my husband's family. When I got the RSD DX I was told to research.

I am a hairdresser, so I have had to think creative alot at times.

I believe they are covering gram + and gram - with your antibiotics. Hugs, Roz
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Old 04-30-2009, 02:19 PM #17
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Hi,

Please check in, and let us know now you are doing. Like I mentioned in my above post the neg and postive are being taken care of, but this does not cover the cyst from. If your up for it, chat with your MD about it.

I went into Endocarditis and I just don't want it to happen to anyone else

Hugs, Roz
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Old 04-30-2009, 06:36 PM #18
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Just a comment...

The Clindamycin is used when bone infection is present or a risk.
Often used for jaw infections following extractions as well. So the ear infection would count. Very few antibiotics penetrate bone.

The other drug Cefdinir, is for penetration into soft tissue.
Not all drugs penetrate tissues equally. For example, Keflex which is a cousin to the cefdinir does not work for sinus or ear infections. But Cefdinir is especially good for this purpose.

I don't think in this case it is L-form/cyst form at work. It is a mixed infection that is invading two types of tissue.
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Old 04-30-2009, 07:26 PM #19
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Roz, alot of drug choice has to do with many factors.

The organism causing the infection.
The tissue where the infection is.
The particulars of the patient (allergies, or liver functions, age, weight).

In your case your organism was the main deciding factor. Your organism goes into hiding, and this complicates the treatment quite a bit.

Ear infections are typically other organisms than you had.
Once infections get into the bone (mastoid process), Clindamycin is one of the few choices. I have even seen mastoid infections that require aggressive IV's.
Let's hope that Grammadur's resolves easily!
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Old 04-30-2009, 08:27 PM #20
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mrsd this is very true that mastoid infection can end up having to be treaded with IV antiboitics as this happen to my lil one she was only 3 and spent a 4 days in the hospital. they are nasty infections and very painfull period. so sally i hope that you are feeling better soon and hope that you can get some rest

carrie
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