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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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04-27-2009, 09:36 AM | #1 | ||
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Junior Member
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Hi All,
I was diagnosised of having RSD on my left foot 4/8/09. My pain doc is going to do a sympathetic nerve block, has this block helped anyone who has RSD. Also through research I have read that lidoderm patches help RSD. I have been having my husband put one patch over my toes and one patch over the rest of my foot. Hurt likes h**l for him to touch my foot and have the patches on my foot, but after about an hour the pain seems to be better. Has this helped anyone. Thanks. Have a nice day. Kate |
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"Thanks for this!" says: | gardengrl (04-29-2009) |
04-27-2009, 10:11 AM | #2 | |||
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Magnate
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welcome to the forum.
I have had blocks and they helped me but a lot of people get no relief from them. As far as the patches. I have been using them for about 4 years and I love them. You can use 3 at a time and I do see relief even for my pelvic area when I put it on my left thigh area. Anything that helps us is a blessing. Ada |
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"Thanks for this!" says: | gardengrl (04-29-2009) |
04-27-2009, 12:49 PM | #3 | ||
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Magnate
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Hi. We are all different but I can not tolerate these. A light touch to my rsd area hurts. These increased my pain. I do know many get relief so again it is what works for you and sometimes that may change I have found. Everyone just like the patches get different relief and for different amounts of time with blocks. Are you trying any other meds too? Welcome to the boards too and I am sorry you are facing this too
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"Thanks for this!" says: | gardengrl (04-29-2009) |
04-29-2009, 08:55 PM | #4 | ||
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Junior Member
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Thanks for answering my post. To answer you question I do take 300 mg lyrica a day, lidoderm patches, klonopin 1 mg a day, percocet 5mg 1 4 times a day, and robaxin 750 2 times a day, and other drugs for other med conditions. Kate |
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"Thanks for this!" says: | gardengrl (04-30-2009) |
04-29-2009, 09:34 AM | #5 | |||
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Hi Everyone, I'm new to this forum. I normally hang out in the brain injury forums & Alzhiemers...I have CRSD 2....& I care for my mom who has Alzh,Schiz,& LBD.... My Pain Clinic Doc. just Dx me w/this CRSD 2...although i have had it since my accident 9 yrs. ago. So the pain is NOT new. Moms illness has really taken most of my time so my 3x a week PT has been reduced to once a week if I am lucky! So I find myself in much more pain these days...& like you all, looking for ways to deal. I have been getting Cortisone injections..usually 4-5 in dif. locations, every other month....They help Sometimes. Someone had mentioned Botox for Pain relief? Has anyone tried this yet? Currently my pain control involves a TENS unit or Two...Vicodan 3x daily, which I hate...Cortisone injections, PT that gives me a good variety of Laser treatments, Ultra sound heat, Massage, Strenghtening exercise, Heat & Ice packs, and Mylfasia Release....... I have Not tried the pain patches yet. Are they prescription? I have Many Pain issues, too many to descibe....just as many of you are dealing with. I know as of yet there is no "magic bullet"...but ANY relief would be so nice......Any idea's or suggestions are very welcomed...Thanks And also, Please excuse typo's as my brain is backwards & spellcheck won't work for me |
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04-29-2009, 09:40 AM | #6 | |||
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Magnate
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The Lidoderm patches are prescription.
Some people can't use them but I get a lot of relief with mine. Sorry to hear you are going through so much. Hang around you will learn a lot and meet a lot of good people. Ada |
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"Thanks for this!" says: | gardengrl (04-29-2009) |
04-29-2009, 08:50 PM | #7 | ||
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Junior Member
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Thanks glad to know the blocks helped you. And glad you get relief from the patches, kate |
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"Thanks for this!" says: | gardengrl (04-30-2009) |
04-27-2009, 01:16 PM | #8 | |||
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Junior Member
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"Thanks for this!" says: | gardengrl (04-29-2009) |
04-29-2009, 08:59 PM | #9 | ||
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Junior Member
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Glad you got some relief from the blocks even though it was a couple of days. I wear my lidoderm patches at night on my foot and usually if and when I can get to sleep they fall off when I am a sleep. Thanks for the good luck on the block will keep you posted on how it goes. Kate |
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"Thanks for this!" says: | gardengrl (04-30-2009) |
04-28-2009, 01:13 AM | #10 | ||
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Junior Member
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From my experience, the blocks are important because they work to reset the recycling pain signal and the patches are good for relief for a short period of time. I use the patches sometimes on my lower back and it does help some. Hope that was helpful.
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"Thanks for this!" says: | gardengrl (04-29-2009) |
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