Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 05-17-2009, 01:02 PM #21
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CRPSbe CRPSbe is offline
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Location: Belgium, Europe
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CRPSbe CRPSbe is offline
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Join Date: Mar 2009
Location: Belgium, Europe
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Quote:
Originally Posted by loretta View Post
Hi CRPSbe, Sorry you have sleep problems too. It's tough isn't it. How do you know the RSD isn't in your spine? Any tests?
There's no talk of "RSD" being anywhere in my back. I don't feel it is RSD (whole other sensations that I'm feeling in my back).

My spine was damage free in 2007, when X-rays were taken, though I have considerable pain in my back. It comes and goes, but is mostly there and mostly in the mornings. 2 years ago, my back just locked into place, I had this hollow back posture and the pain was intolerable. I could hardly move. Excruciating pain. They thought it might be Bechterew's disease (ankylosing spondylitis), but the blood test (rheumatoid factor) was negative, and there was no damage to the spine (yet), so no diagnosis could be made... so far it's thought to be bad posture because of the RSD. There is damage where the cilium bones go to the sacrum, something about sacro-iliac joints, AFAIK. I do know that I have pain where my back goes to my buttocks, especially on the left side, HURTS LIKE HELL (bony, gnawing, pain), sometimes inhibits me to get up. Sitting down is hardly ever comfortable. I was told by the doctor that if it does turn out to be ankylosing spondylitis (that means that if with time damage does occur to the spine), then in that case it's a very slow form. It's not really reassuring when your back keeps aching... but hey, I'm no spring chicken anymore, am I?
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All the best, Marleen
=====================
Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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