Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 07-27-2009, 10:54 PM #1
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My hands are almost always in a "Fist" position.... when I am tired or nervous they shake a lot.

I usually do not notice it happening as it happens quite often. Usually a friend or acquaintance will point it out to me.

I can't stop it from happening but I can calm it down by holding my hands or crossing my arms and in a way trapping my hands.

I wish you all the best...
I know how frustrating all of these "weird" symptoms can get.

Abbie
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Old 07-28-2009, 01:38 AM #2
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Default Goodness

Haven't anything quite like these shake things y'all speak of. I know if I try to use say a ratchet for too long, then I'll have bad pain and shakes, like a charley horse, sorta...didn't think it was anything to do with the RSD though, just thought I was getting old, pretty much. lol. Didn't happen before I had this nightmare though. Wow. I never realized just how many things have been changed in my body until fairly recently. Y'all really got to stop telling me these things!

Thank you all for the info. Later all, Smoke
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Old 07-28-2009, 09:48 AM #3
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Originally Posted by Smoke_666 View Post
Haven't anything quite like these shake things y'all speak of. I know if I try to use say a ratchet for too long, then I'll have bad pain and shakes, like a charley horse, sorta...didn't think it was anything to do with the RSD though, just thought I was getting old, pretty much. lol. Didn't happen before I had this nightmare though. Wow. I never realized just how many things have been changed in my body until fairly recently. Y'all really got to stop telling me these things!

Thank you all for the info. Later all, Smoke
Hi, Im sorry this has begun for you. It is very upsetting.I have full body tremors. the worst is when they hit my face. twitches and jerking . the rest of my body goes through a whole little dance of twitches tremors jerks and shaking. I take balcofen three times a day with a double does at night. It has helped me a great deal. I also was given ativan for the anxitey of it all. Good luck and I am sorry this has begun. May I ask how long you have had rsd?CZ
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Old 08-01-2009, 12:27 PM #4
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Default Had it awhile

I got it from a sprained knee in '03, it started burning and itching nearly immediately, but has stayed in just my knee until recently. It went into remission sorta twice, didn't need painkillers for several months each time, although I couldn't carry much weight or run at all or walk very far and/or quickly, but it was better. This time when it hit, last spring, it really went nuts, pain levels off the chart, and only then was I diagnosed properly. Up until then it was a 'stubborn sprain.' From everything I have been reading, I have been beating the odds in every respect. I think that's because I haven't stopped living my life, tried to just ignore it, medicating the pain enough to enable myself to go about life as normally as I can. Seems to me that if I continue working it normally day by day, it is kept in check. So...I try to ignore the fact that it hurts, and just move on. I also consider myself lucky that my baby is a daddy's boy, and needs/demands for me to hold him, play with him, etc. Keeps me happy, and when I'm taking care of him, the pain level is considerably lower. It also seems that I got lucky in that the new drugs most everyone here has been on or are currently on I have had a bad reaction to. I wonder how many symptoms associated with the RSD are not the side effects of the drugs? Anyone not on neurontin etc had these twitchy effects? I'd imagine so, but I am curious as to the rate. I recently met someone who never had any problems medically and when put on klonopin acquired grand mal seizures. Still has them, months after use was stopped.

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Originally Posted by CZZ74 View Post
Hi, Im sorry this has begun for you. It is very upsetting.I have full body tremors. the worst is when they hit my face. twitches and jerking . the rest of my body goes through a whole little dance of twitches tremors jerks and shaking. I take balcofen three times a day with a double does at night. It has helped me a great deal. I also was given ativan for the anxitey of it all. Good luck and I am sorry this has begun. May I ask how long you have had rsd?CZ
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