Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 04-30-2009, 03:32 PM #4
SBOWLING SBOWLING is offline
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Join Date: Mar 2009
Location: Ohio
Posts: 310
15 yr Member
SBOWLING SBOWLING is offline
Member
 
Join Date: Mar 2009
Location: Ohio
Posts: 310
15 yr Member
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Hello Shell,
Welcome to Neuro Talk. There are a lot of wonderful people on here. We all have been through a lot and I'm sure you will get lots of advice.
I have full body RSDS/CRPS. It started several months after my disc fusion at C6 and C7 (the neck). The nerve that was pinched by the ruptured disc was the main nerve that goes down the right arm. I have learned it takes 18 months for an injured nerve to completely heal. I was making the bed and pulled hard with the right arm and restressed the, not yet completely, healed nerve. It took about 6 months before the doctors gave in and DX me with RSDS.
If they want to go in and remove scar tissue ask if the area they will be working in can have a nerve block done? So it doesn't aggrivate the RSD more than need be.

I am having a scope done on my left ankle in June. My ortho doc is familiar with RSD and called Dr. Schwartzman in Philly (RSDS research doctor) they are going to block the nerves going into my left leg and hopefully won't set off a flair up when they scope my ankle.

Good luck and take care,
Sherrie
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