Thank you for saying that Sherrie. I totally agree. I came to this place to find support from around the world. In the US the awareness is far greater, people are much more outspoken. I am someone who is very outspoken and somehow that conflicts with the general mentality that most Belgian people have towards talking about diseases. I feel that RSD is still very taboo where I live, that it is still quite controversial - and patients are treated as such, unfortunately.

I came here from a Belgian chronic pain support forum that is tied to an official chronic pain organisation (I am a moderator for the RSD section there). There are some RSD patients there, but not that many, and they are the ones who can at least talk openly about it.

I agree that I have met some very special people through rsd and always amazes me how kind people are who have these types of struggles. It helps to feel less alone. When someone states how they feel or what their rsd is doing it is like I said it where in real time I often feel like an alien if that makes sense. Hugs and happy/healthy wishes to all