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| Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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07-07-2009, 05:10 PM
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Hello All,
I just got back from PM doctor's appt, in OKC..it went GREAT! We actually spent 15 min. talking about MY concerns; I listened to his concerns; and We worked out a plan. My pm doc added Baclofen 20 mg x 3 per day, for the muscle spasms in my back, and jerking movements of my right arm and leg. He told me that I should have less anxiety with the affects of OpanaER, Tramadol, and Baclofen, combined. Actually, he wants me to start out with 1/2 tablet in AM,1/2 tablet next dose, a full 1 tablet just before bed. He listened to me, that's all I wanted. PM Doc even said that I COULD GO INTO REMISSION..2-3 yrs down the road..no one knows..but to stay positive  "TEAM" of my doctors is back in play! I will be seeing PM doctor every 2 months and continue seeing my psychologist every 2 weeks. I feel so relieved...now to pack for AZ. trip coming up on 7/9/09. I do feel so much better since this PM appt. went so well. I have enough meds to get me through my trip, plus a few more days. My PM doc is just a phone call away if I need him; same with my psychologist. Now, to get to AZ., focus on my Sister, hopefully MEET Loretta from NT(will chat on the phone for sure), and keep my stress levels and no pain flares in check. I appreciate your prayers and kindness. I will stay in touch while in AZ..as I did last time..laptop  love you, Dew~
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. A Positive Attitude Will Assist Me Toward An Active Life, Once Again . WC Injury 03/24/07;Two Right Knee Surgeries on 5/22/07 and 01/16/08. Surgeons and Physical Therapists ignored my concerns of burning pain, swelling, and no improvement and getting worse. Diagnosed RSD/CRPS I/Sympathetically Mediated Pain Syndrome/Chronic Pain on 06/2008 by family doc;on 08/2008 and 12/2008 diagnosis confirmed by two WC PM Doctors: Both legs;hips; hands; and spine effected by this culprit. SSDI granted 01/2009. |
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| "Thanks for this!" says: | CRPSbe (07-08-2009) |
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07-07-2009, 07:42 PM
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Dew -
Thrilled to hear your appointment went well! Sounds like you'll have what you need to get through the next few weeks. I know that everone's thoughts will be with you and your sister.  Mike |
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| "Thanks for this!" says: | Dew58 (07-07-2009) |
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07-07-2009, 10:26 PM
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Great news dew,,you always inspire others ,,,,your in our prayers,,bobber,,,P.S when your flying over N.M wave out the plane window,,lol,
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| "Thanks for this!" says: | Dew58 (07-07-2009) |
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07-07-2009, 10:27 PM
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great news! congrats!!!
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| "Thanks for this!" says: | Dew58 (07-07-2009) |
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07-08-2009, 06:04 AM
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Magnate
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I am glad you are feeling better. I hope you have a safe trip as well. I just flew a little over a week ago and I know that it can be stressful etc and then with family issues but you are in my thoughts and I hope it goes ok. Keep us updated. Many happy and pain free thoughts
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| "Thanks for this!" says: | Dew58 (07-08-2009) |
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07-08-2009, 07:02 AM
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Dew,
Awesome news!! Now you can go to your sister without additional worries. Our thoughts will be with you and your sister during this difficult time. Travel safe and remember to take a little time for yourself so you can stay healthy. Your sister is very lucky to have you! Lots of love
__________________
AJ ** W/C injury...Diagnosed with CRPS w/ nerve damage in Apr '09, after a long 2 ½ yr battle with a knee injury. RSD has now spread to entire body. |
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| "Thanks for this!" says: | Dew58 (07-08-2009) |
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07-08-2009, 08:28 AM
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Glad to hear everything went well and the doctor took the time to listen to your concerns...
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| "Thanks for this!" says: | Dew58 (07-08-2009) |
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07-08-2009, 08:42 AM
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Magnate
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SO glad to hear that your appointment went well, Dew and that your doctor actually took the time to listen to your problems - many doctors wont do that so you are very lucky and he definitialy sounds like a keeper!!!
I hope your flight/trip to AZ goes well and please send our best wishes onto your sister and family. Take care!
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To the World you may be one person, but to one person, you may be the World. Last edited by ali12; 07-08-2009 at 11:26 AM. |
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| "Thanks for this!" says: | Dew58 (07-08-2009) |
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07-08-2009, 01:06 PM
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Dew,
That's wonderful to hear! Taking new meds takes a bit of time, but I sure do hope the Baclofen works for you. It didn't do a thing for me, but we're all different when it comes to RSD so it's great that they are now providing you with some relief for the aching, spasming muscles. Have fun packing & have a safe flight!
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All the best, Marleen ===================== Work related (car) accident September 21, 1995, consequences: - chondromalacia patellae both knees - RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008 |
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| "Thanks for this!" says: | Dew58 (07-08-2009) |
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