Yes, Lisa.
That is simply how I talk. (I'm SO happy that was noticed!)

I don't want you to leave.
You didn't ask any silly question, there simply is no such thing.
(You need to know, I have a TBI, head injury, also) so sometimes, I'm just acting out.... bad boy!!

I can be a jumblebrat! And, I don't mean to take it out on anyone!

Please,
Stick Around?

Pete
asb

just a gentle reminder that sometimes members can misinterpret what others are saying.

no one seems upset on this thread but rather just members giving their feelings related to the original question.

when it comes to strong pain meds, only a qualified physician can accurately direct as to the correct dose to take

WOW "AintSoBad". I unfortunately know the deep, dark pain that you speak of and have NEVER read or heard or anyone that really understands the type and sense of loss that I have had to endure with this disease until now.

I'm very saddened to hear about your struggles and loss.
You've found a great place here though, and you'll get lots of support and friendship!
Although I've had rsd for 27 years, then a head injury a decade ago, (which unfortunately knocked the rsd into orbit), I still find it a challenge almost daily, to try live anything that might resemble a "Normal" life.
PM me if you like! We can talk more. I'd like that.

Pete
asb

many docs say 12 is the limit for liver toxicity using the 10/325 is that what you are wondering about??.



glad to hear you are still working...

Alaska Mike, Thanks for the info.. I was just wondering if any one had a ballpark idea with having rsd in one limb especially when that one limb u walk or stand or do almost everything with it.. Like an arm with rsd is not being walked on for example.. I don't mean to be a smart??? but I am trying to find out all the info I can on this disease.. for all of my life any doctor I went to if they gave u 10 pain pills they just assumed u would get hooked on them I have had 9 surgeries in the last few years and other breaks and things and I think some people tolerance for pain medicine is alot different than some people who have never broken any bones or had any surgeries.. Thanks LIsa

If giving advice I'd say talk with your doctor, everyone is different and on other different medications...
Having said that, I'm prescribed one every 6 hours max 6/day but my MD is aware that I'm regularly takin on a 4-5 hour schedule during the day...I try to aim 7am, 11am, 3pm, 7pm. If I overdo and the pain is getting out of control I may take 2 (again my MD is aware) or like tonight I'm not sleeping because of pain, I'll take one hoping the pain will lessen enough to sleep.

My RSD is in my right leg, knee down to ankle, following motorcycle accident. I have to keep the pain under control during work hours in order to function. I have 6 1/2 more years until retirement (I hope) if they don't do away with our pension plan. As soon as I get home I'm in bed with my leg up. Lynnie

SunshineGirl,

Your question is one that we as patients ourselves can only make a personal guess at... You truly would have to ask your prescribing physician this question.

Please remember that no two of us with RSD are exactly the same and no two of us respond the same to medications or therapies.

I think it is GREAT that you are still able to work!!! I worked for quite a while before this monster went on a rampage and I could no longer stand, walk, or sit for more than 5 to 10 minutes with out my pain levels shooting to the point of me passing out. My RSD has spread bodywide---every inch of my body feels as though I've been left on an iceburg and received a 3rd degree sunburn. Millions and millions of cold hot poking needles per inch of my body, severe muscle tremors and cramping.

I WOULD LOVE TO BE ABLE TO HOLD A JOB... I've had top physicians tell me that this is no longer possible. This was and is a harsh reality for me... I have worked since my young teens and most times held 2 and 3 jobs at a time.

As far as clothes, shoes, and anything touching my body.... I forced myself to pretty much keep wearing the same clothes as I was pre-RSD... It is still very painful but I tolerate it better now.

As far as shoes... I can no longer wear a shoe that ties or is tight....I wear Crocs Mammoth---they are fuzzy lined. I wear socks from the Softest Sock in the World line.

I truly wish you the best and if you have any questions feel free to ask... I will do my best to help you out or direct you to the information you are looking for...


Abbie